The Unexpected Journey

“When Bellemere was first born, as excited parents welcoming our second child, we never would have imagined the journey we would be faced with upon her arrival. After a month in the Neonatal Intensive Care Unit, countless specialists and doctors visits, we finally learned we were blessed with a child who has CHARGE syndrome. Bellemere was first born ECI extra pic.docxWith time, we found out Bellemere was deaf, her physical strength would be delayed and she is a silent aspirator which means she could take no food or liquid by mouth due to choking risks. Bellemere had a MickeyTube placed so she could get her nutrition through a tube in her stomach.

Our family was introduced to Easter Seals Greater Houston’s Early Childhood Intervention (ECI) program  after one of many hospital stays. Aliza was our case manager and she guided us along the way. With the help of Anita (physical therapist), Britni (Early Intervention Specialist), Elena (Occupational Therapist), and Brenda (Speech Therapist), we were taken through the next steps in Belle’s journey until she turned 3 years old. These therapists came to our house weekly to work with us which was crucial in limiting her exposure to germs. With their help, guidance and patience, Bellemere has mastered crawling, cruising on her feet while holding on to things, and walking with the assistance of a walker. She is also now able to feed herself pureed foods (something we never thought we would see her do), communicate using sign language, use her fingers to grasp small objects and many other skills that are necessary for her daily life. Also after discovering that Belle was deaf, our Easter Seals ECI case manager connected us with AI services, which supplied us with a deaf education teacher who also came to our home to work with us.

Not only was this amazing group of ladies able to help us with Bellemere’s development, they also helped prepare us for transitioning to the school district by her 3rd birthday. We will forever be grateful to ECI and these therapists who came into our home to help our sweet Bellemere succeed. I highly encourage any parent to contact ECI if they feel their child needs any assistance with their development. Thank you ECI of Easter Seals!!”

Krishna Hernandez, mother of Bellemere

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