Walk With Me…Virtually: Walk, Stroll or Roll the Block!

Out of an abundance of caution and care for our clients, teams, sponsors, friends and family walkers and rollers, we’ve made the decision to reroute Walk With Me 2020 to a virtual event. 

This year, we invite you to: Walk With Me…Virtually: Walk, Stroll or Roll the Block!

How it works: We encourage you to register (if you haven’t already) and walk, stroll or roll around your own block daily, weekly and/or on the event day between now and April 25th. Of course, your safety comes first, but we also know that taking in a little bit of sunshine can help all of us during this difficult time!

As you walk, stroll or roll your block, be sure to take photos or videos…or even live stream your experience and use the hashtag #WWMVirtually and tag @EasterSealsGreaterHouston then encourage your friends and family to do the same to help support your (or their own) fundraising efforts.

Last year, 4,000 Houstonians were in attendance. With our virtual walk, we KNOW you can help us beat that!

Every “virtual” step you take helps connect veterans, children and adults with all types of disabilities to the services they desperately need.

How to register to walk, stroll or roll around your block!
*If you have already registered as a walker, you are automatically considered a virtual walker (or stroller or roller!). As such, you do not need to re-register.
*All we need is your help with spreading the word about Walk With Me…Virtually!
*If you’re new to our Walk With Me community, register as a virtual walker here!

How to encourage your friends to continue to help you in your virtual fundraising efforts:

  • As you walk, stroll or roll your block, be sure to take photos or videos…or even live stream your experience and use the hashtag #WWMVirtually and tag @EasterSealsGreaterHouston to encourage your friends and family to do the same to help support your fundraising efforts. You can even create a Facebook fundraiser to make it that much easier!
  • Ask friends and family to join your virtual team, create their own teams and challenge their peer networks (Scout troops, Mother’s Day Out, faith communities, volunteer groups and more) to do the same!
  • Click here for an updated email you can send to your friends and family to encourage continued donations to your virtual walker page!

Donate NOW to help us continue our life-changing work!

COVID-19 has hit Easter Seals and its clients, employees and fundraising efforts hard so we need your support in helping us reach our $1 million goal NOW MORE THAN EVER BEFORE. Your commitment will help ensure that Easter Seals can continue its mission of providing services for thousands of Houstonians living with all types of disabilities each year.

Donate to a walker to support Easter Seals Greater Houston today!

We look forward to virtually walking, strolling or rolling the block with you!

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MOST of All!

Teamwork makes the dream work!  Teens with cerebral palsy and volunteers (many of them long-time volunteers – thanks, friends!) had a great time last month at Easter Seals Camp MOST Weekend Camp – riding horses, doing archery, and challenging themselves at the tower – and learning about self-awareness, advocacy, and teamwork during the jam sessions. Camp Most pic 1 This past weekend the crew worked together to line up PVC pipe and get a marble from one end to the other.  Kudos to teen, Sebastian, for stepping up and leading the teens and getting everyone started on a plan.  The teens got the ball rolling and had a resounding success!

Kenzie Richard, Easter Seals Greater Houston, Program Coordinator

Camp Most pic 2

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ESGH Group Activities Statement (CoVid19)

2020 CoVid Cancellation

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March 3, 2020 · 8:20 am

Together We Did It!

First, as a family we’d like to say a big thank you to the Easter Seals Early Childhood Intervention program team that has been part of the process over the almost 3 years working with our twins, Noah and Roman. Together WE DID IT! WE are doing it! They are achieving so much and catching up to developmental milestones. It’s been wonderful to see them thriving and meeting goals.ECI blog for february pic 3

Noah and Roman were born at 30 weeks unexpectedly. As a parent that can be a scary thing not knowing the outcome of your babies. I did not have the opportunity to see, nor hold my babies once they were both delivered and they stayed in the NICU for about 2 months and received therapy services thru the hospital. Luckily, we were referred to Easter Seals ECI for the opportunity to have continued care for our little guys. Thru ECI we have been given more of the tools necessary to help our boys develop and grow.

Our service coordinator, Roshanda, has been very helpful in educating us about options we have for different services thru Easter Seals and ECI and making sure needs have been met. She always has open communication with me and answers questions or concerns we may have. Roshanda is very pleasant to work with and I feel like she genuinely cares.

The twins both started physical therapy with Melissa. It was a bittersweet moment being discharged from Easter Seals Houston’s PT services BUT it was a blessing they reached all their goals and physical developmental milestones! Thank you Melissa!

The boys have been receiving Easter Seals Houston’s occupational therapy services with Gumaro. We thank you Gumaro for getting the boys on track.  Always having patience with them during the good days and the bad days.

Speech Therapy through Easter Seals is so much fun for Noah and Roman most of the time(if they’re in a good mood) the vocabulary has gone from grunts and crying to pointing, using single words, 2 and even some 3 word phrases. They definitely like to show off that they can communicate with mom and the family now. Thank you Tate! Also thank you to Michelle during SLP sessions with Noah when he had a tongue tie. You were so helpful to us. You introduced him with his 1st favorite book “Never Touch a Dragon” which he still loves.

The twins also receive SST (Specialized Skills Training) with Lakeisha. They have so much fun with all the therapists, but they really enjoy Lakeisha. They don’t even realize she’s working with them and think it is play time the whole session! ECI blog for february pic 2

You all have watched our little guys have their best days and worst days. Thank you to the team of everyone who has helped us, help them, along the way thus far! These little guys have come a long way and the support and services thru Easter Seals ECI I truly feel like has gotten them on track to where they are now!

Thank you so much!

-Noah, Roman and Family

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There Will Never Be Enough ” Thank You’s”

Our baby, Nicolas was born with Arthrogryposis, this condition causes many joints to be stiff and crooked at birth. This was a surprise since the doctor didn’t catch this in the ultrasounds.  It was a pill hard to swallow as every parent expects their baby to be healthy. Nicolas was a tight little ball who could not stretch out. The Arthrogryposis on Nicolas affected him in his elbows, wrists, 10 fingers, knees, and complex clubfeet. The doctors weren’t sure if he was going to be able to walk. He was in need of a lot of medical care including surgeries, cast, and therapy.

We heard about Easter Seals Greater Houston and their program called Early Childhood Intervention that could help us give therapy to Nicolas from home. We called and after a few weeks, they were at home making the first evaluation. After this evaluation, they told us Nicolas qualified and they would start coming to our home for PT, OT, and ST.

Every single lady from this program has changed our lives in so many ways. They have shown this love for Nico since the day they met him. They were at my house every week since my son was 2 months old until 3 years old.

1The OT therapy started with DeeDee, she is a very sweet lady who won’t stop smiling. Nico was so happy to see her. She helped Nico with his hands, shoulders, elbows, and wrists doing stretching. She taught Nico to use his fingers to grab toys, small balls, push bottoms, and play with his cars. She also did stretching on a big ball. She became a friend of our family. She brought us hope.

The PT started with Melanie. She helped Nico with stretching his lower body. She helped us when we were having problems with Nico’s braces. She helped Nico sit and start bearing weight, she even put Nico in his first gait trainer.

After that, we had to move to Houston. The ECI program rescheduled and reassigned within Easter Seals and did everything for us and after a couple of weeks, they started coming to our new apartment.

The PT continued with Cristy. My family will never forget this lady. When Nico was born the doctors weren’t sure if he was going to walk. She helped Nico in so many ways. She made him stronger. She was always very energetic and happy. She helped Nico walk his first steps on his walker. And then the unimaginable happened. She said Nico was ready to walk by himself. So Nico took his first steps with her at 20 months old. I have that memory in my mind like it was yesterday. Everybody was so happy and in tears. It was the best moment in our lives. We are so thankful for her. After that she taught Nico to go up and down small steps. She taught Nico to kick a ball. She taught Nico to go from a sitting position to standing. She will be always a special person in our lives.

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The OT continued with Sherry. She helped Nico with fine motor skills. Nico got better grabbing things. Sherry also taught Nico colors, numbers, and animal names. She was always bringing new toys to keep Nico learning new things every therapy session.

For ST, both speech pathologists were great teaching Nico how to blow bubbles and saying new words like pop, mom and daddy.  They read books to Nico and played with him to teach him even more new words.

We moved again into a new house and with the move, we again got new therapists within Easter Seals.

Lisa started with Nico for OT. She always said Nico was super smart. She encouraged Nico’s Spanish. She was very funny and always made us laugh. She taught Nico to draw lines, circles, play with play-doh and so much more. She was always a spark of joy for us.

3Britney started with Speech. She taught Nico so many new words. Nico’s first sentence was thanks to Britney. She was always finding funny ways to made Nico speak. She helped me a lot too. She was the one who made the transition of Nico to the School District.

Nico also started speech group therapy. He loved this therapy. He was so happy to go and see the other kids. This therapy was really fun. Nico learned how to interact with other kids, and how to follow instructions. He learned a lot of new words and how to answer questions. He learned to interact with his teachers.

I can’t say thank you enough to Easter Seals and this ECI program and all people working in it. They changed our lives in so many ways. They went beyond just being therapists. They made us feel like family. They were there in one of the sad moments of our lives and they brought us hope.  Nicolas is doing so well thanks to all these ladies. We love you and will never forget you. Thank you very much!

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By: Nicolas’s Mom

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The Staff that Works Magic

Our Easter Seals staff is amazing! We are so proud of the work they do daily.  This is regarding a client in many of our programs that has Down syndrome, vision impairment and is on the autism spectrum. His mother also happens to be our BridgingApps Program Director.

“I have recently started working with Vincent on his knee,  He has had a subluxed patella four times, and the last one being the worst.  When I evaluated Vincent, he was very shy and didn’t want to participate or engage in physical therapy. CTP 1st Vincent pic 1 We did the evaluation in the hall outside of the PT gym, because that was as close as we could get him at the time.  I talked to him, reassured him, and made fun games out of the evaluation.  We finally got him in the gym to work on the mat.  Mom was concerned about him lying on the floor because this is not something he willingly does at home, but I was able to make a fun game out of it, and mom participated as well.  Now the whole family is doing Vincent’s home exercise program! I have only just begun working with Vincent, and we are going at his pace for therapy.  He now calls me Ms. Streisand, and I just roll with it because kids can call me anything they want to if it will get them to work, play, and have fun!”

Watch this super cute video of Vincent in therapy!

Missy Dafler, PT, DPT, C/NDT, CKTP

Physical Therapist, Easter Seals Children’s Therapy Program

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First Light and The Wish Float

What an incredible 4th First Light Family Camp we had! And the lessons, encouragement, and realizations keep coming.  The families are there because they are first and foremost a military family. We are proud that we can be of support to them through Easter Seals  Veterans Services, but more importantly, we are honored by the work they have done for our Country and the work they are doing for their families now.  We were also really excited to have donors who wanted to ensure that all the children attending received a new bike. Who knew it would lead to some incredible revelations. Untitled

“First light is hopeful, beautiful, but it is also when you are at your most vulnerable.”

One family of four who attended with two children both of whom have disabilities, learned a new lesson.  “Wow a bike!  You think I can learn how to ride it?”   Apparently, the children were never taught to ride… plenty of reasons, mostly protecting them – but the truth is it was just one more thing that made the children feel different adding to the list of disability, divorce, and military.   One of the children after taking the first turn on learning to ride said, “This is going to make me feel really good.”

Another mom of a family attending reflected on her childhood memories of what a bike meant to her as a child, bottom line – freedom.  “I think about my kids and the childhood they’re having now.  They are not having the “normal” childhood I had.  Maybe these bikes are going to help us ALL feel free again.”

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“The Wish Float, when something spiritual becomes real.”

 

 

The Wish Float, a tradition at First Light it, is an emotional event, after a day of mental health focused break-out sessions, nighttime with the family and new friends, stars out, our flag lit up and campfire going. Everyone is asked to send out their wishes and hopes in a note with a candle into the darkness.

One family, enjoying the night realized one young adult child was off to the side on their own.  Everyone assumed normal teen stuff.   Turns out, a younger child with a disability from another family, being emotional, had reached out to the closest person for comfort, their young adult. And it turns out, that is all it took, the touch of a child for this family member to realize that they always needed to be there for their family, not just for the weekend, but for life. First Light

Upon seeing the picture – Mom said, “I remember loving this moment! I felt like things were going to be truly o.k. with my kids.”

And that is what this Easter Seals Veteran Family Camp is all about.  Being okay with yourself, and being present for your family.

Christine Ellery, Easter Seals Greater Houston, Program Director; Kenzie Richard Easter Seals Greater Houston, Program Coordinator

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