Tag Archives: advocate

Back-to-School with TexasYouth2Adult

BridgingApps' Amy Fuchs giving a presentation over TexasYouth2Adult

The following blog was written by the Easter Seals Greater Houston’s BridgingApps Team.

As school gets geared back up, you may be like many parents who are looking at the last few years of their teenager’s school years and asking themselves questions such as, “What happens next?” or “Are they prepared for adulthood?”.  If you need guidance getting your teen ready to transition to adulthood, our website, www.TexasYouth2Adult.com, is a great place to start! 

Preview of TexasYouth2Adult Categories

TexasYouth2Adult empowers parents by giving them the questions they did not know they needed to ask in lists organized by age and easy-to-search categories including Medical, Education, Social & Recreational, Legal & Advocacy, Financial Management, Independent Living, and Employment. So for example, for a task categorized as Medical, they know to start with their child’s physician when asking questions.  Because TexasYouth2Adult is organized not only by categories, but also by lists created based on age ranges, parents are able to look ahead so that they can be prepared for discussing transition before the school waits to begin the discussion, which is often right before the student’s 14th birthday.

TexasYouth2Adult also contains a wealth of articles and apps related to transition needs.  For example, maybe you or your adult child needs to notarize a document.  Did you know there is an app that allows you to have certain documents notarized using the camera on your mobile device?  Check out the BridgingApps review of Notarize to learn more.  Maybe your young adult needs assistance reading certain materials for class or for their jobs?  In this case, a text-to-speech app like Speechify could be a great tool for them to have on their smartphone or tablet.

To learn more about helping your loved one move from childhood to adulthood, visit www.TexasYouth2Adult.com and create a free account so that you can access the recommended tasks lists and all of the helpful articles.  For more suggestions on recommended apps or to search for your own apps, visit www.BridgingApps.org.

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Anchors Aweigh Campers

IMG_1272Ahoy from Camp MOST (Miles of Smiles for Teens)! This past weekend, Easter Seals Greater Houston hosted Camp MOST– a weekend retreat for young adults with cerebral palsy and other neurological disorders. Our theme this spring was Anchors Aweigh- we had nautical decorations, activities, and snacks! With 14 amazing campers and 17 amazing counselors we set sail for a fun filled weekend!

IMG_1175On Friday, the campers docked at Camp For All around dinner time. That night, we had an awesome Amazing Race activity and then a campfire complete with s’mores, skits, and some campfire songs. On both Saturday and Sunday Camp MOST hit some rough waters- it rained off and on both days. Despite the rain, our camp had the MOST fun! We got to participate in canoes, fishing, photography, archery, paintball, ZIPLINING, and most of all our amazing Jam Sessions.

In our Jam Sessions, we talked about awesome topics related to transition into young adulthood, and what that looks like as a teen with a disability. In the first Jam Session we discussed how independence doesn’t mean doing it all alone. Topics included learning to speak up and self-advocate during IEP meetings and college advising meetings. Later in the day campers were asked to “Set Your Course!” and each shared what they want and what they need to do to achieve this goal.

Each camper ended the weekend with fantastic memories, new friends, and a plan to set their course in order to achieve their dreams! All aboard for success!

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“I want to figure out where I am in life and who I truly am. Step 1: Don’t listen to the negative talk/self-talk”

Mackenzie Richard, Camp Coordinator, Easter Seals Greater Houston

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Loving. Growing. Advocating.

Chelsea is a 22 month old Easter Seals Greater Houston client Chelsea L pic (5)who was born with a very rare gene disorder, GATAD2B syndrome, which results in the “loss of function”. There are approximately only 11 cases known worldwide.  Characteristics of this disorder affect all areas of development from cognitive delay, low muscle tone, speech and feeding delays to sensory processing delays.

Chelsea has been in the Easter Seals Greater Houston Early Childhood Intervention Infant Program  (ECI) for the past 14 months.  She receives physical and occupational therapy along with specialized skill training.  Chelsea lives at home with her Mom, Brittany, her Dad, Cody, and her 3 year old big brother, Bradley. With the help of ECI therapists and family support Chelsea has made huge strides over the past 14 months. Mom stated “When we first started ECI services Chelsea was 8 months old she could not even hold her head up.  I couldn’t carry her like a typical baby. ECI has helped Chelsea development in ways I never knew possible.”  Chelsea is currently able to roll, sit on her own for extended period of time, hold her own bottle, beginning to finger feed herself and is able to stand at her couch with supervision to interact with her big brother! Mom stated “I’m more confident now that ECI providers have taught me the skills to help Chelsea’s development.  With the help of ECI my daughter is coming along great!”

Chelsea Linn 2 (1)Chelsea’s Early Childhood Intervention therapist shares that Brittany has become a huge advocate for her daughter and others who have been diagnosed with GATAD2B syndrome. Brittany has even traveled to Austin to encourage funding for this extremely rare gene disorder. Brittany is a true example of the power of a parent who advocates for their child!

Kimberly Sporrer, Early Childhood Intervention Infant Program, Easter Seals Greater Houston

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