Tag Archives: Babies with Disabilities

There Will Never Be Enough ” Thank You’s”

Our baby, Nicolas was born with Arthrogryposis, this condition causes many joints to be stiff and crooked at birth. This was a surprise since the doctor didn’t catch this in the ultrasounds.  It was a pill hard to swallow as every parent expects their baby to be healthy. Nicolas was a tight little ball who could not stretch out. The Arthrogryposis on Nicolas affected him in his elbows, wrists, 10 fingers, knees, and complex clubfeet. The doctors weren’t sure if he was going to be able to walk. He was in need of a lot of medical care including surgeries, cast, and therapy.

We heard about Easter Seals Greater Houston and their program called Early Childhood Intervention that could help us give therapy to Nicolas from home. We called and after a few weeks, they were at home making the first evaluation. After this evaluation, they told us Nicolas qualified and they would start coming to our home for PT, OT, and ST.

Every single lady from this program has changed our lives in so many ways. They have shown this love for Nico since the day they met him. They were at my house every week since my son was 2 months old until 3 years old.

1The OT therapy started with DeeDee, she is a very sweet lady who won’t stop smiling. Nico was so happy to see her. She helped Nico with his hands, shoulders, elbows, and wrists doing stretching. She taught Nico to use his fingers to grab toys, small balls, push bottoms, and play with his cars. She also did stretching on a big ball. She became a friend of our family. She brought us hope.

The PT started with Melanie. She helped Nico with stretching his lower body. She helped us when we were having problems with Nico’s braces. She helped Nico sit and start bearing weight, she even put Nico in his first gait trainer.

After that, we had to move to Houston. The ECI program rescheduled and reassigned within Easter Seals and did everything for us and after a couple of weeks, they started coming to our new apartment.

The PT continued with Cristy. My family will never forget this lady. When Nico was born the doctors weren’t sure if he was going to walk. She helped Nico in so many ways. She made him stronger. She was always very energetic and happy. She helped Nico walk his first steps on his walker. And then the unimaginable happened. She said Nico was ready to walk by himself. So Nico took his first steps with her at 20 months old. I have that memory in my mind like it was yesterday. Everybody was so happy and in tears. It was the best moment in our lives. We are so thankful for her. After that she taught Nico to go up and down small steps. She taught Nico to kick a ball. She taught Nico to go from a sitting position to standing. She will be always a special person in our lives.

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The OT continued with Sherry. She helped Nico with fine motor skills. Nico got better grabbing things. Sherry also taught Nico colors, numbers, and animal names. She was always bringing new toys to keep Nico learning new things every therapy session.

For ST, both speech pathologists were great teaching Nico how to blow bubbles and saying new words like pop, mom and daddy.  They read books to Nico and played with him to teach him even more new words.

We moved again into a new house and with the move, we again got new therapists within Easter Seals.

Lisa started with Nico for OT. She always said Nico was super smart. She encouraged Nico’s Spanish. She was very funny and always made us laugh. She taught Nico to draw lines, circles, play with play-doh and so much more. She was always a spark of joy for us.

3Britney started with Speech. She taught Nico so many new words. Nico’s first sentence was thanks to Britney. She was always finding funny ways to made Nico speak. She helped me a lot too. She was the one who made the transition of Nico to the School District.

Nico also started speech group therapy. He loved this therapy. He was so happy to go and see the other kids. This therapy was really fun. Nico learned how to interact with other kids, and how to follow instructions. He learned a lot of new words and how to answer questions. He learned to interact with his teachers.

I can’t say thank you enough to Easter Seals and this ECI program and all people working in it. They changed our lives in so many ways. They went beyond just being therapists. They made us feel like family. They were there in one of the sad moments of our lives and they brought us hope.  Nicolas is doing so well thanks to all these ladies. We love you and will never forget you. Thank you very much!

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By: Nicolas’s Mom

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They Grow Up So Fast

“He is talking more and more every single day!  He’s gotten a lot of boo boos and I always kiss him where he got hurt and say “all better Jakey”.  He now kisses me and says, “all better mommy”.  He’s definitely growing up!  Andrea had a cap and gown for his ESGH  ECI graduation.  I just wanted to thank you again for all your help!!  Jacob and I truly appreciate it tremendously!!” Screenshot_20190618-124740_Messages

-Jacobs Mom

Easter Seals ECI Infant Development program is parent-driven and focuses on enhancing the development of children ages birth to 36 months with developmental delays or disabilities. It is our goal to give families the tools they need to make a significant impact on the development of their children.

We provide families with certified or licensed professionals who come into the child’s natural environment, as a part of the routine where the child learns, plays and lives, and use their skills to help in the progression of reaching the child’s developmental milestones. At the same time the therapists are modeling and teaching the parent/caregiver the skills needed to work by themselves with the child. We believe that parents/caregivers are the most important influences in a child’s life and should be an active player in their child’s development.

Every child who qualifies for the program will be assigned a service coordinator who will coordinate all the individualized services for the child in addition to being the main point of contact for the family. Other services provided may include physical therapy, occupational therapy, speech therapy, developmental services, nutrition services, respite services, and assistive technology assistance. If there is a concern about vision or hearing, we will make referrals to the appropriate location to see that your child’s needs are being met.

Sharon Mott, Easter Seals Greater Houston,  Transition and Outreach Coordinator, ECI Infant Program

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Care You Can’t Pay Enough For

ECI central blog pic

“My experience with Early Childhood Intervention (ECI) through Easter Seals Greater Houston has been extraordinary.  The staff has been exceptional. I’ve always felt that Charles’ success has been important to them from my first meeting with Sarah his coordinator with ESGH. She would inform me of anything she felt could benefit Charles beyond therapy services. Every therapist that Charles has had seemed to take a special interest in him. Although I knew they had other clients and all the children were important, they just had a way of making you feel special. They have been committed to his growth potential and meeting his established goals. They take the time to listen to my concerns and would find ways to help me rectify them, even when it was regarding how the therapy was being done. I’ve been able to trust this group with the care of my son. When he would whine through therapy, I knew that they weren’t going to do anything that would hurt him. I’ve never had a session in which I’ve felt Charles was just another kid they had to see doing a repetitive job as robots. That’s care you can’t pay enough for. Having a special needs child has been challenging and rewarding. I truly feel that with Easter Seals Greater Houston’s ECI program, I’ve had a team to help me give my son the best start and get him on a road to success.”

Shalemeiko Freeman, Mother of Charles

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Countless Success and Growing

Easter Seals Greater Houston’s Early Childhood Intervention Program (ECI) is for children from birth to 36 months and includes a comprehensive range of services including developmental services, speech, physical and occupational therapy, nutrition, vision, hearing and case management services which are all provided in the family’s home or daycare.  All of the children eligible for early intervention have a serious delay in at least one area of development or a diagnosed medical condition that places them at high risk.  Effective September 1, Easter Seals Greater Houston’s ECI program will expand to serve Brazos, Burleson, Grimes, Leon, Madison, Robertson, Walker and Washington Counties. The Infant Development/ECI team will serve 1,400 children each month with countless success stories like Ja’Shawn.

Ja’Shawn is a handsome 34 month old littleJeShawn Blocks 1 boy that has been in ECI since the age of 12 months. He failed his newborn hearing screening at the hospital and was born with asymmetric and abnormal pinnae, which has resulted in a severe to profound hearing loss.  Since that time, he’s received Easter Seals Greater Houston’s Early Childhood Intervention services such as Occupational, Physical & Speech Therapy, Specialized Skills Training, and Case management during his enrollment. With his diagnosis, he also benefits from Auditory Impairment or AI services though the public school system. During the visit-the AI teacher, Ms. Peggy was providing therapy to him.  The uniqueness of ECI’s visit shined though during their interaction. Ms. Peggy and Ja’Shawn were baking cupcakes and frosting them. Ms. Peggy explained they counted the cupcakes, labeled during the mixing, and also washed the dishes when done. These routines based interventions help Ja’Shawn learn to sign each of the tasks. For example, he signed “cookies, please”, “thank-you”, “help, please” He is able to follow 2 step directions and signs up to 3 words together.  Ja’Shawn’s mom, Sabrina, also says he reads lips when other adults are not able to sign with him.

JeShawn 1Ja’Shawn turns three soon and has been evaluated for the PPCD, preschool program for children with disabilities program with his local ISD.  Sabrina is hoping he’s accepted to a special school in the district that has a signing program and ECI will help her advocate for that to ensure smooth transition of services!

If you have concerns or questions about your child’s development, please call 713.838.9050, ext. 385 and request a free developmental assessment.

Early Childhood Intervention, Easter Seals Greater Houston

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