Tag Archives: caregiver

Relax, Recharge, Feel Refreshed

Thanks to Easter Seals Greater Houston and Hilton Hotel of America, Downtown Houston – my husband and I enjoyed the gift of time together and a break from home, where we could recharge ourselves. Living in a disabled family, although rewarding, is full of extreme ups and downs that can be excessively stressful at times. Around the clock duty as a care taker to our adult son with autism and co-occurring disabilities means that time away is a chance to unwind, have some much needed down time and also return ready to take on another day. We really appreciated that Easter Seals Greater Houston Respite Program gives us the chance to get away from home, but be close enough in case of emergencies. We enjoyed our trip to The Houston Galleria to prepare for the holidays and were spoiled with deliciously prepared breakfasts.

respitality-and-hilton-hotel

Easter Seals Greater Houston has been a constant support in our lives for our son. Not only with the Respite Program, but when he was younger and attended Family Day Out on Saturdays once a month and of course the much anticipated Camp Buckaroo in the summer. Before the location in The Woodlands started, we would drive over an hour each way into Houston for camp, it was worth the chance to have our son engaged and stimulated in a safe environment for a few days during the summer break.

Thank you for the opportunity to enjoy this time especially during the hectic holiday season. We were so happy and care free for a couple of days – and this opportunity could not have come at a more needed time.

We appreciate Easter Seals Greater Houston, love the Hilton of Americas and are thankful for all you do for the disabled community and care takers.

Thank you,

Nicole and Darrel, Respite Services clients, Easter Seals Greater Houston

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The Caregiver Thanking The Caregivers

2014 caregiver blog 2It takes a whole world of people to care for a child with special needs. It’s more than parents, family, friends or neighbors. They are oh so important, but it takes a cadre of caregivers in our lives. Yes, those who literally watch my son so I can have some respite, but those who care beyond an appointment. Doctors who pay attention, therapists who work together to create a well–balanced sensory diet to help my child meet the demands of his day, educators who care about understanding the way my child learns and business offices who understand why the bill hasn’t yet been paid.

My son may not be able to do a lot of things kids his age can do. But he cares about his world and he is happy living in it. I find what ends up meaning the most to us at the end of the day are those who took time to care for us as a family.

My son has so much to teach those who will listen. Yes, you may have to talk about princesses and villains for what may seem like a very long time. I like to remember something I read the other day that really struck me:

“The only disability in life is a bad attitude.”  I think that says it all.

Michelle Groogan, Parent, Advocate, Writer and Client of Easter Seals Greater Houston

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A Caregiver Journey of Expectation

“It’s amazing how caregivers do it all. November is National Family Caregivers Month, and Easter Seals wants to share the many faces of caregiving and the incredible things they do.  All month-long, we’ll highlight caregivers and caregiving resources on our website, including those who care for veterans, spouses, neighbors, parents and more.” So check out our blog AND our national headquarters!

Easter Seals Greater Houston client.  When my husband and I decided to start our family six years ago, we didn’t have any expectations other than healthy “typical” children. We both came from a typical family where disabilities or special needs just did not exist.  Circumstances over the past six years have caused me to reexamine expectations and the nature of “family “while our journey has taken a much different path.2014 caregiver pic 1

Our first daughter Emma was the light of our lives. While she had some speech issues due to ENT issues of ear and throat infections, after surgery she began to increase her speech and her verbal skills now are superb. We had the same expectations during my pregnancy with Annie, our second child.  Those expectations began to change very quickly after her birth.  Feeding issues, medical issues, mood and sensory issues, just to mention a few, kept my husband and I back and forth to hospitals and doctors’ offices while our journey down this road was definitely  much different from we expected.  It seemed every day was a different and new road to negotiate.  One day Annie started vomiting and I noticed she was vomiting up hair – She was pulling out her hair and eating it! No wonder she had complained of stomach aches and fevers!  The pediatrician directed us to shave her head, and that haircut of all her beautiful baby curls to a now bald child shoved was the first of many accommodations we had to make.

Over the next year issues continued and testing revealed Annie had Celiac Disease. Her sensory issues continued resulting in tantrums and melt downs, all at the very worse time.  Annie is receiving help with speech therapy, occupational therapy, behavior therapy, school support at St. Peters Early Childhood Development Center, and medical treatments for her Celiac.

Support for me and my husband came to us from many different directions. We started to get the help our family needed to rest and rejuvenate and recover when we discovered Respite!  Bernadette, our Respite Provider was wonderful with Annie.  I discovered I could take some time for myself, and make it to a yoga class once a week!   My husband and I could have a date!  I could spend special time with Emma giving her some individual special time.

People say that parenting is the toughest job there is, and they are absolutely correct! For families who do not have help, it can be an overwhelming experience. Add disability to the mix, and it often can become crushing.  We were so lucky on our journey of different expectations.  We found Respite through Easter Seals Greater Houston, a great preschool through St. Peters and wonderful therapists to support Annie and the whole family! My husband and I feel so blessed to be caregivers of two beautiful children, and we appreciate the help of everyone in our lives that are helping us raise them to be the amazing people we know they will be!

Caregiver Kelly

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