Tag Archives: caregiver

Triple the Support

The following is a testimony was written by a parent who participates in Easter Seals Greater Houston’s Respite Program.

Respite Care has been a godsend for my family! I have six boys, three of which are triplets with autism. To say that the amount of work they create for me is overwhelming would be an understatement! Between personal hygiene needs, special diet needs, and special education needs, there just never seems to be enough time to get anything done. With Easter Seals Greater Houston’s Respite Program my life has become manageable! I am able to take care of my children during the week, and on Saturdays I bring in a caregiver who lets me take care of everything but them! I finally have time to get my house in order, cook some healthy meals, and yes believe it or not- have an hour or two of me time! During the pandemic this was especially helpful! Having the triplets at home 24/7 was beyond stressful and trying to get them to complete their online academic responsibilities was pretty much impossible! So to have a break one day a week from everything was literally a small piece of Heaven! I am extremely grateful to Easter Seals Greater Houston and their Respite Program for providing my family and I with this monthly relief and I pray they are able to continue to offer this assistance to many families in the future!”

Respite Services provides relief options to parents who provide ongoing care of their family member who has a disability. Learn more about this crucial service that helps both the caregiver and their loved one today.

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Back-to-School with TexasYouth2Adult

BridgingApps' Amy Fuchs giving a presentation over TexasYouth2Adult

The following blog was written by the Easter Seals Greater Houston’s BridgingApps Team.

As school gets geared back up, you may be like many parents who are looking at the last few years of their teenager’s school years and asking themselves questions such as, “What happens next?” or “Are they prepared for adulthood?”.  If you need guidance getting your teen ready to transition to adulthood, our website, www.TexasYouth2Adult.com, is a great place to start! 

Preview of TexasYouth2Adult Categories

TexasYouth2Adult empowers parents by giving them the questions they did not know they needed to ask in lists organized by age and easy-to-search categories including Medical, Education, Social & Recreational, Legal & Advocacy, Financial Management, Independent Living, and Employment. So for example, for a task categorized as Medical, they know to start with their child’s physician when asking questions.  Because TexasYouth2Adult is organized not only by categories, but also by lists created based on age ranges, parents are able to look ahead so that they can be prepared for discussing transition before the school waits to begin the discussion, which is often right before the student’s 14th birthday.

TexasYouth2Adult also contains a wealth of articles and apps related to transition needs.  For example, maybe you or your adult child needs to notarize a document.  Did you know there is an app that allows you to have certain documents notarized using the camera on your mobile device?  Check out the BridgingApps review of Notarize to learn more.  Maybe your young adult needs assistance reading certain materials for class or for their jobs?  In this case, a text-to-speech app like Speechify could be a great tool for them to have on their smartphone or tablet.

To learn more about helping your loved one move from childhood to adulthood, visit www.TexasYouth2Adult.com and create a free account so that you can access the recommended tasks lists and all of the helpful articles.  For more suggestions on recommended apps or to search for your own apps, visit www.BridgingApps.org.

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BridgingApps-A Year Like No Other

2020 was a year like no other. Though it had incredible challenges BridgingApps, a program of Easter Seals Greater Houston, worked hard and accomplished so much. BridgingApps includes a websiteapp reviews by therapists and special education teachersa custom app search engineassistive technology labs and training options for parents, organizations and schools.

In 2020, BridgingApps focused on virtual training and were able to serve an incredible amount of clients online. The available research and the success stories the team captured reflects the potential power of using technology and proper training to significantly impact the lives of people with special needs, disabilities, Veterans, older adults, caregivers and more. Check out everything this hardworking and connective program accomplished!

Learn more and get involved with BridgingApps today!

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Letter from the Heart

To our friends at Easter Seals Greater Houston, I would like to thank you for the support you have given to our family as well as to many other families like ours. Your great contribution to many families like ours is extremely helpful, we are very grateful for the support that the Easter Seals Respite Program has given and this makes our life and work easier with our children and other families in special need. Respite Blog Careigiver for November spanish translation

Your work is not simply an office job but a way to be good human beings and in the same way, it will be rewarded with the best payment that they could accrue which is the blessing of God. You are the ones who who give hope to every person who labors with disability and makes things possible and others to relax, breathe and sit down with the support they need.

Hoping that these few but grateful words will come to your hearts, I am very grateful to them, that God will continue to bless them.

-Valentin, Easter Seals Respite Client

Respite Services provides relief options to parents who provide ongoing care of their family member who has a disability. Many parents of children and adults with disabilities have low incomes and cannot afford to hire providers to take time away from their children. Many people with disabilities require 24-hour, around-the-clock supervision, attention and care. This continuous demand becomes a tremendous drain on caregivers emotionally, physically and mentally-this care will remain constant as they grow older. Consequently, families of children with disabilities are at high risk for divorce, substance abuse and child abuse because of the continuing stress of caring for the child with disabilities. Respite care is an assistance program to parents, but just as importantly, is a prevention program aimed at stopping some of the social problems that can result from the tremendous demands made on families due to the disabilities of their child or the institutionalization of the family member with a disability. For more information click here. This important program is largely possible because of the generosity of our community, please consider donating today.

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Caregiving for the Caregiver

The following was written by a parent who receives Respite Services from Easter Seals Greater Houston.

I am an immigrant, single mother of a son who has autism and speech delay. I have a full-time job supporting my son and I. Things are difficult with no family in town and just a couple of friends. We essentially have little to no caregiver support here. Thanks to Easter Seals Greater Houston’s Respite Program I now have help. We are now connected with their Respite Program that provides the break and support that I was looked for and needed.

I have now opportunity once a week to not only take care of myself but also go out to social gatherings, spend time with friends and will be starting a dance class now too!  I am lucky to say that thanks to Easter Seals Greater Houston and their caregiver support, my life and family finally feels balanced.

Respite Parent, Easter Seals Greater Houston Respite Services

Many parents of children and adults with disabilities have low incomes and cannot afford to hire providers to take time away from their children. Many people with disabilities require 24-hour supervision, attention and care. This continuous demand becomes a tremendous drain on caregivers emotionally, physically and mentally-this care will remain constant as they grow older. Providing this much needed support for caregivers is only possible because of the generosity of the community. Would you please consider helping support the thousands of families that depend on Respite Services and donate today?

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College-bound… Katy Parent Night Out helps teens prepare for college!

es pno_-20

Easter Seals Greater Houston Katy Parent Night Out has a long history of helping teens on the spectrum, including providing informational services for career and post-secondary education opportunities.  Two of our very special clients, brothers who joined our program back in 2016 when they were 13 and 14 years old, have benefited from PNO’s guest speaker program, providing guidance for adolescents transitioning into adulthood!  In 2017, a representative from HCC’s VAST (Vocational Advancement and Skills Training) Academy, a branch of HCC that provides “Opportunities include vocational certificates, pre-college, and freshman success bridge courses, career readiness credentials, internships and employment assistance offered through an inclusive, relevant and affordable avenue.”.  Both boys, who have speech and developmental delays, have been accepted into HCC’s VAST program and are thriving in their new role as “big men on campus”.  They are seeking vocational certificates that will help them find meaningful employment after graduation.  These clients have overcome multiple obstacles (including losing their home from Hurricane Harvey in 2017) and Easter Seals Parent Night Out is proud to provide support and encouragement as they’ve grown into amazing young adults.  PNO continues to inspire teens like these brothers, and WE are inspired THEIR success!

Kelly Knight, Easter Seals Greater Houston, PNO Respite Coordinator 

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I am in the Caring Business

Caregiving-the activity or profession of regularly looking after a child or a person who is sick, elderly or disabled. There can be the feeling of fulfillment and happiness, it can also be overwhelming on a caregiver and could be mentally and physically exhausting. Being a Respite Family Coordinator for Easter Seals Greater Houston, this is what I hear every day through tears, sighs, laughter, joy and distress. I can’t help but feel the families’ pain and do what I do with love. I share their pain, fear and hurt. I can’t deny that this position has made me a better person, more compassionate and understanding to what we take for granted each and every day. I can sit here and ramble on about what a caregiver goes through, but what I need is for people to understand is that we do what we do…because we CARE. Not just anyone can do that and for that, I am grateful that I wake up knowing I did something to make someone else’s day just a little bit better.

When people ask me what I do? Screenshot_2019-07-02-09-17-22~2.png

I start with I ABSOLUTELY love what I do.

I try to bring awareness and motivate people to go out of their way to help those in need. Overall my organization, ESGH is about caring, my Respite program is caring. If all I have to do is show them that they are appreciated each and every day by offering our services, then I will go above and beyond. It is not just a job, I do it with lots of love and pride. To all the caregivers out there, may your heart be filled with joy, warmth and happiness.

“It’s not how much you do, it’s how much love you put in the doing.” –Mother Teresa

 

Respite Services provides relief options to parents who provide ongoing care of their family member who has a disability. Many parents of children and adults with disabilities have low incomes and cannot afford to hire providers to take time away from their children. Many people with disabilities require 24-hour, around-the-clock supervision, attention and care. This continuous demand becomes a tremendous drain on caregivers emotionally, physically and mentally-this care will remain constant as they grow older. Consequently, families of children with disabilities are at high risk for divorce, substance abuse and child abuse because of the continuing stress of caring for the child with disabilities. Respite care is an assistance program to parents, but just as importantly, is a prevention program aimed at stopping some of the social problems that can result from the tremendous demands made on families due to the disabilities of their child or the institutionalization of the family member with a disability.

Adriana Rico, Respite Family Coordinator, Easter Seals Greater Houston

 

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Caring for the Caregiver

The following was written by the parents of one of our beloved clients that have participated in Easter Seals Greater Houston’s Family Day Out and Respite Voucher programs for many years.

Family Day Out is a center-based Respite service 20171007_102818that provides respite care on Saturdays to families of children ages 6-14 with all types of disabilities. Our son, Brandon, and the other children benefit from arts and crafts, games, and playground activities and receive one-on-one assistance from volunteers. As parents we benefit greatly with much needed time to get caught up on anything we may need to get done (paperwork, house work …the list goes on) or even have a much needed day date! (Dates are far and in between!) Family Day Out also gives us much needed one-on-one time with our daughter. Children that have siblings with disabilities often don’t get as much attention due to the high demand kids with disabilities require. It’s a great opportunity to spend quality time with siblings.

What we love most about Family Day Out is that our son is able to spend time with volunteers, staff, and friends that over the years have gotten to know and love him.  Each session is also staffed by a nurse and a center director. It’s somewhere he feels 100% accepted and has tons of fun.

20161203_114712We are so grateful to have been able to look forward to at least one Saturday several months a year that Brandon will be well taken care of while having fun so we can have time to ourselves, guilt-free. This September will be a sad one since the Family Day Out program is only able to accommodate kids through 14 years old at this time and Brandon turns 15 at the end of September.

We also participate in Easter Seals’ Respite Voucher Program which allows us to select our own childcare provider for in-home care. These hours allow us to run errands and take a much-needed break while Brandon is with someone we know and trust to care for him. As Brandon has gotten older the respite hours to use at our leisure have become as much of a blessing as Family Day Out. Qualified sitters (those who can handle meltdowns, behavior issues, etc.) for children with disabilities have a much higher rate than typical sitters so the respite hour vouchers help tremendously when funds are already tight.

Easter Seals Greater Houston’s 20171007_130244

Family Day Out program and Respite Voucher program are truly blessings to ours and so many other families!

Thank you,

Jeff and Tiffany, Respite client parents, Easter Seals Greater Houston

Learn more about Easter Seals’ Care Giving Services.

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Relax, Recharge, Feel Refreshed

Thanks to Easter Seals Greater Houston and Hilton Hotel of America, Downtown Houston – my husband and I enjoyed the gift of time together and a break from home, where we could recharge ourselves. Living in a disabled family, although rewarding, is full of extreme ups and downs that can be excessively stressful at times. Around the clock duty as a care taker to our adult son with autism and co-occurring disabilities means that time away is a chance to unwind, have some much needed down time and also return ready to take on another day. We really appreciated that Easter Seals Greater Houston Respite Program gives us the chance to get away from home, but be close enough in case of emergencies. We enjoyed our trip to The Houston Galleria to prepare for the holidays and were spoiled with deliciously prepared breakfasts.

respitality-and-hilton-hotel

Easter Seals Greater Houston has been a constant support in our lives for our son. Not only with the Respite Program, but when he was younger and attended Family Day Out on Saturdays once a month and of course the much anticipated Camp Buckaroo in the summer. Before the location in The Woodlands started, we would drive over an hour each way into Houston for camp, it was worth the chance to have our son engaged and stimulated in a safe environment for a few days during the summer break.

Thank you for the opportunity to enjoy this time especially during the hectic holiday season. We were so happy and care free for a couple of days – and this opportunity could not have come at a more needed time.

We appreciate Easter Seals Greater Houston, love the Hilton of Americas and are thankful for all you do for the disabled community and care takers.

Thank you,

Nicole and Darrel, Respite Services clients, Easter Seals Greater Houston

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The Caregiver Thanking The Caregivers

2014 caregiver blog 2It takes a whole world of people to care for a child with special needs. It’s more than parents, family, friends or neighbors. They are oh so important, but it takes a cadre of caregivers in our lives. Yes, those who literally watch my son so I can have some respite, but those who care beyond an appointment. Doctors who pay attention, therapists who work together to create a well–balanced sensory diet to help my child meet the demands of his day, educators who care about understanding the way my child learns and business offices who understand why the bill hasn’t yet been paid.

My son may not be able to do a lot of things kids his age can do. But he cares about his world and he is happy living in it. I find what ends up meaning the most to us at the end of the day are those who took time to care for us as a family.

My son has so much to teach those who will listen. Yes, you may have to talk about princesses and villains for what may seem like a very long time. I like to remember something I read the other day that really struck me:

“The only disability in life is a bad attitude.”  I think that says it all.

Michelle Groogan, Parent, Advocate, Writer and Client of Easter Seals Greater Houston

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