Tag Archives: Cerebral Palsy

MOST of All!

Teamwork makes the dream work!  Teens with cerebral palsy and volunteers (many of them long-time volunteers – thanks, friends!) had a great time last month at Easter Seals Camp MOST Weekend Camp – riding horses, doing archery, and challenging themselves at the tower – and learning about self-awareness, advocacy, and teamwork during the jam sessions. Camp Most pic 1 This past weekend the crew worked together to line up PVC pipe and get a marble from one end to the other.  Kudos to teen, Sebastian, for stepping up and leading the teens and getting everyone started on a plan.  The teens got the ball rolling and had a resounding success!

Kenzie Richard, Easter Seals Greater Houston, Program Coordinator

Camp Most pic 2

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The Strength for Surgery

Jack group

The goals of our adapted karate program (as are all our free playgroups that are open to children in The Caroline School, Children’s Therapy, Infant Program etc) are physical, cognitive, and social-emotional. In addition to the strength, balance, and coordination that are necessary to complete the movements in adapted karate, children develop friendships, work on following directions, participate in and work as a group, understand others’ differences, and build self-confidence. The culmination of all the students’ hard work is the belt test ceremony. Students who are prepared are invited to show off their skills for their families and a panel of black belts from the community.

Jackson is a star pupil, and has consistently attended our classes for the past several years. He has a diagnosis of cerebral palsy, but not even the braces on his legs can slow him down. While preparing for the upcoming belt test, we learned that Jackson would be unable to attend because he would be undergoing major surgery. Instead of waiting for months of recovery and rehabilitation, the black belt panel agreed to host a special belt test for Jackson before his surgery. Our Sensei, Master Luis Garcia, has always told our clients that if you could earn a belt, you could do anything; that in comparison to the discipline, hard work, and commitment it takes to earn a belt, everything else is easy. Jack beltJackson had shown us already that he had earned his belt, and we wanted him to take that belt, and the strength it represents, with him as he went in for this surgery.

When we asked his mother, she was so excited. She told us that Jackson loves karate and even has his older earned belt and certificate up in his room.

Jackson had his entire support squad with him on the day of his test! His parents, grandparents, friends, therapists, and aunt all came to support this very special young man on his big day. He showed off his improved flexibility and balance with his kicks. He impressed us all with his fast reflexes and good control during blocks and partner self-defense. The highlight of the night, everyone’s favorite part: board breaking. Jackson completed an advanced board break—on a real board, he would tell you—as if it were nothing. He did so well, and he knew it! Jackson was so proud of himself. His family was elated, beaming with pride.

Jack breakIt is through community support that we are able to offer our playgroups which also include dance, music, yoga, art and teen night for free so that all children with disabilities can attend, learn  to socialize, improve the skills they are already working on in therapy and build their self-confidence.   What a gift.

Daryn Ofczarak, M.A., CCC-SLP, Easter Seals Greater Houston, Speech Language Pathologist

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Anchors Aweigh Campers

IMG_1272Ahoy from Camp MOST (Miles of Smiles for Teens)! This past weekend, Easter Seals Greater Houston hosted Camp MOST– a weekend retreat for young adults with cerebral palsy and other neurological disorders. Our theme this spring was Anchors Aweigh- we had nautical decorations, activities, and snacks! With 14 amazing campers and 17 amazing counselors we set sail for a fun filled weekend!

IMG_1175On Friday, the campers docked at Camp For All around dinner time. That night, we had an awesome Amazing Race activity and then a campfire complete with s’mores, skits, and some campfire songs. On both Saturday and Sunday Camp MOST hit some rough waters- it rained off and on both days. Despite the rain, our camp had the MOST fun! We got to participate in canoes, fishing, photography, archery, paintball, ZIPLINING, and most of all our amazing Jam Sessions.

In our Jam Sessions, we talked about awesome topics related to transition into young adulthood, and what that looks like as a teen with a disability. In the first Jam Session we discussed how independence doesn’t mean doing it all alone. Topics included learning to speak up and self-advocate during IEP meetings and college advising meetings. Later in the day campers were asked to “Set Your Course!” and each shared what they want and what they need to do to achieve this goal.

Each camper ended the weekend with fantastic memories, new friends, and a plan to set their course in order to achieve their dreams! All aboard for success!

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“I want to figure out where I am in life and who I truly am. Step 1: Don’t listen to the negative talk/self-talk”

Mackenzie Richard, Camp Coordinator, Easter Seals Greater Houston

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Getting the MOST Out of Camp

 

GroupCamp MOST (Miles of Smiles for Teens) is Easter Seals Greater Houston’s three-day overnight retreat for teens with cerebral palsy. Camp MOST and Easter Seals’ Transition Program teamed up to create four jam sessions, group sessions for learning and reflection. The four topics covered self esteem; understanding realistic vs. unrealistic expectations and exploring options; conflicts and setbacks; and envisioning the future. Great group chats were had, and they didn’t stop when the sessions ended- you could hear the teens still talking about the topics around the table at mealtimes!

Ever wonder who our Camp MOST teens are or what they’re like?  Here’s a glimpse, in their own words:

DSC_0004What are you good at?

  • Writing & reading
  • Painting
  • Making friends
  • Learning
  • Art & being sassy
  • Listening
  • Swimming & running
  • Making conversation
  • Coding
  • Expressing my opinion
  • Riding horses
  • Video games
  • Making people laugh

What are your goals and ambitions?

  • Get stronger physically
  • Lower my school stress
  • Be the best person I can be
  • Publish a book
  • Continue to go to school and work
  • Work hard in school
  • Go to college and move out
  • Finish college
  • Express myself
  • Do well at Rodeo
  • Transfer to a 4 year college, get a degree, and become a web designer
  • Walk across the stage at graduation (from a camper who uses a wheelchair)

What makes you strong?DSC_0097

  • My spirit to get back up
  • My kindness
  • Having a good heart
  • Being myself
  • The people who love me
  • My work ethic
  • My sense of humor
  • Church
  • The support and encouragement I get from friends on social media

My future is bright because…

  • I’m going to try my best in life
  • I’ll be graduating soon
  • I do amazing at school
  • My positive attitude
  • My family and friends support me
  • I’m me
  • I’m talented
  • I’m going to prom with a pretty girl
  • I work hard, I don’t give up, and I don’t feel sorry for myself

Special thanks to Jacquelyn Miller, Easter Seals Greater Houston’s Ready to Achieve Mentoring Program (RAMP) Coordinator/Transition Coordinator, for adapting the curriculum for Camp MOST, and to Amy Burgdorf for facilitating the jam sessions.

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Miraculous Megan: Longtime Client and Friend

Megan Fry is an amazing 17 year old girl. She has been part of the Easter Seals Greater Houston family for over 10 years. She has the mind and the personality of a typical developing teenage girl. She loves art and has her own website, Just My Eye, that meg-w-dvox-300x225showcases her creations. One of Megan’s many unique qualities is that she was born with cerebral palsy, with an end result of being nonverbal and using a wheelchair to maneuver around. You need to be careful because she drives her chair around very fast! She communicates and shows off her big personality by using a Tobii. The Tobii is a device that allows Megan to use her eyes to pick out her words which are then shared through the speaker.

Over the years, Megan has attended our summer camps, participated in Family Day Out, received In-Home Respite, and participated in our BridgingApps program. Her family has participated in our Lil’ Rustler Rodeo night with the Houston Livestocgroupk Show and Rodeo, used a Respitality weekend, participated in our Walk With Me at the Houston Zoo event and our Hats Off to Mother’s Luncheon. We were fortunate to have Megan as our summer intern this past year. She created and distributed our Easter Seals Montgomery County newsletter. Megan is currently participating in our Family Day Out program as a Junior Director. She is amazing with our clients and our families.

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Megan is a true success story and ambassador for Easter Seals Greater Houston. Megan and her mom even went on speaking engagements last year to represent Easter Seals during the United Way campaign. She has received services and continues to give back to our community. We can’t wait to see what the future holds for Megan because we know there is nothing she can’t accomplish!

Kristie Carlisle, Respite Program, Easter Seals Greater Houston

Check out Megan’s dad’s post about how assistive technology helped him connect with his daughter here!

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