Tag Archives: communication

Miraculous Little Melody

The following was written by an Easter Seals Greater Houston client parent whose adorable little girl is participating in the Early Childhood Intervention Program.

Meet Melody! She is the baby of her family and the youngest of three girls. And she has each of us wrapped around each one of her precious, short, little fingers.

Melody has been a surprise from day one. It was a surprise to find out that we were expecting again at that time and even more of a surprise when we received a prenatal Down Syndrome diagnosis at 10 weeks of pregnancy. Again and again, during her development in the womb we came close to losing her, but each time she pulled through. God protected her. Knowing she would be born with multiple heart issues, we carefully planned her birth at a trusted hospital where her care team, whom we worked with during pregnancy, was ready and waiting for the big day. I was not expected to go past 36 baby Melody eci 2017 pic 2weeks of pregnancy but again Melody surprised us and waited until just two hours past her due date to make a shockingly fast and extremely dramatic appearance in her Mama’s bathtub at two in the morning with only her mommy and Daddy present. No time to get to the hospital and we barely had 911 on the phone when she decided to join us in great haste. There she was, our beautiful little baby with tons of curly dark brown hair and gorgeous brown eyes. It was a terrifying experience but thrilling to finally meet her! Talk about surprising!! By our God’s grace she was born safely and pinked up and started breathing on her own right away. It took 45 minutes for an ambulance to reach us and in that time we just held her wrapped up in a towel, cried and prayed.

We had had lots of time to prepare since we had an early prenatal diagnosis and so while she was still in the NICU we made contact with Easter Seals Greater Houston’s Early Childhood Intervention and requested an evaluation for as soon as possible once she was discharged. Those days were so very exhausting with all of the feeding difficulties she had so I cannot remember the exact age that she was evaluated by these caring people with Easter Seals’ ECI program but I do know that it was swift and we started both physical and occupational therapy right away. Melody has been such a little warrior princess all along and it has been thrilling to watch her meet milestone after milestone, while we have faithfully worked​alongside our therapists. Even though for the first six baby Melody eci 2017 pic 1months she had two holes in her heart (as well as two other heart issues) multiple illnesses, both a lip and tongue tie (which were both revised at around eight months old) and serious feeding struggles, Melody continues to surprise and wow us; like when she suddenly decided to start breastfeeding at eight and a half months old when her mama had given up the dream of getting to share that bond with her. She nursed for six weeks and then she was done but those were priceless times.

She is truly such an incredible gift from God! One we never even thought to ask for ourselves, but He graciously gave anyway, knowing that we needed her in our lives. She (and her doting big sisters) fills our every day with so much joy! Melody is currently just past fourteen months old and is sitting up beautifully, crawling as fast as lighting, pulling up on everything and showing some real interest in walking! She gives enormous hugs and kisses all day long, waves hello and goodbye, drinks through a straw like a champ, has learned how to fake laugh, blows the sweetest kisses, claps her darling, square shaped, little hands and says “Yay!”. She also says “Dada” all the time much to her father’s delight. She loves everyone and literally draws crowds wherever we go. Grocery shopping with her is a nightmare. Ha! Our family is so very thankful for the Easter Seals’ ECI program and look forward to each session we have with our wonderful therapist. Melody is going to do great things with her life and Easter Seals is making for some fantastic stepping stones.

Mrs. Davis, Early Childhood Intervention client parent, Easter Seals Greater Houston

 

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Adult Program Gives Participant Sense of Pride

Meet one of Easter Seals Greater Houston’s awesome young adult clients. Every week she participates in our Life Enrichment for Adults with Disabilities (LEAD) Young Adult Day Program. During the LEAD Young Adult Day Program this non-verbal woman with autism, along with other participants blog2ages 18 to 30, partakes in activities focused on enriching life skills and social skills as well as fun recreational activities. During LEAD, we incorporate her communication device as much as possible; while the rest of the time, we speak to each other through eye contact and gestures. Her mom continually says that this is the only place where she feels comfortable enough to leave her daughter.

We love to see how being in the LEAD program has enriched our participants’blog1 lives. For example, this young woman loves to have things in their place, such as, crayons cannot have wrappers on them, water cannot sit in a cup for too long, and shoes come off as soon as it is allowed. One day during Easter Seals Greater Houston’s LEAD at Memorial Drive Presbyterian Church, we made hats (seen in picture) and instead of ripping off the decorations as soon as she got home, she put it on her head and paraded it around. We provided her the opportunity to create something (with a hot glue gun, I might add) that gave her a sense of pride and independence. This hat was made last year and I am told it sits on her dresser, with every ball, flower, and sequence still intact.

We are proud of all of the growth that our Adults experience by attending Easter Seals Greater Houston’s Life Enrichment for Adults with Disabilities Day Program. We have two Adult Day Program groups, ages 18-30 and another ages 30 and up. We also serve our clients through a variety of other services. Please reach out to Lindsey Holton at LHolton@eastersealshouston.org for more information on how you and your loved ones can get involved!

Easter Seals Greater Houston, Adult Programs

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