Tag Archives: disability

Tools for the Journey Through Life

The following was shared by a parent of a client in Easter Seals Greater Houston’s Early Childhood Intervention Infant Program.

“Once my daughter, Harper, was diagnosed with Autism I knew we needed help! When we first met with Easter Seals Greater Houston’s Early Childhood Intervention Infant Program my child could not communicate. Harper would scream, throw fits, and have meltdowns as she could not tell us what her wants or needs were. She could not and would not point or show us what she wanted. She was also an extremely picky eater, refusing to try any new foods. Experiencing anything new was overwhelming for Harper. She was withdrawn and preferred to play on her own than with the family. I never heard her say mama or experienced those awesome baby/toddler kisses and reading books together.

After Ashley and Jessica from Easter Seals ECI Program started working with her I began to see positive changes in Harper. She started signing which resulted in less meltdowns and fits in our house. As time went on, she started to allow her siblings to play with her and she would laugh with them instead of screaming and taking off. She started tolerating new textures and touching things and exploring in her environment. Though she remained cautious this was a huge accomplishment!

This amazing little girl has continued to improve. Even though she still is not talking verbally she can communicate what she wants to us by pointing and taking us to where she wants to be (often to the freezer for her popsicles and to turn on her favorite toy). She plays with her siblings (they are ages 16, 14 and 9) and we even hear belly laughs now and again, something I previously took for granted. I got my first kiss from her at 2 1/2. She is happy to see me when I come home. I now know without a doubt she knows I am her momma and I know that sounds crazy, but I was unsure as she didn’t react me.

This is just a summary of how far she has come. Everyday is a new day with a child with Autism and not always sunshine and rainbows. She will always have her harder days, but the tools and help we received as a family has really improved our ability to better support Harper. I honestly would never be able to put in words how happy I am with Jessica, Ashley and the entire Easter Seals ECI crew. They set Harper up with a great foundation for her to continue to grow and prosper in her new chapters on this journey through life.” -Harper’s Mom

Are you concerned about your baby’s development? Easter Seals Greater Houston’s Early Childhood Intervention services are available for children birth to 36 months who show a developmental delay, who are at risk for a delay, have a disability or atypical behaviors. Learn more.

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Holiday Meal Tips for the Child with Feeding Difficulties

The holidays are often a wonderful time for social gatherings and delicious meals. We often enjoy sitting down with family and friends and indulging in some of our favorite home-cooked meals. For the child with feeding difficulties, this may be even harder as the child is expected to eat foods they only see once a year, engage with family members who may be unaware of their feeding challenges, and eat in a new, unfamiliar setting.

One way families can help their child is to limit and minimize changes. It is important to feed your child on their same schedule and not wait for the holiday meal. You can offer them at least one of their preferred foods at the meal so they can be participate in the experience. Families can also prepare their child in advance by talking to them about expectations and what they will experience on that day.

To learn more about helping your child with feeding challenges, the Children’s Therapy Program at Easter Seals Greater Houston offers a variety of feeding therapies including SOS Therapy (Sequential-Oral-Sensory). The SOS approach focuses on not only what you can see happening with your child (not eating, gaining weight, spitting out food, etc.), but also what you cannot see happening within organ systems, muscles, sensory processing, learning, behavior and cognition, development, nutrition, and environment.

Little girl enjoying holiday treats

To learn more about SOS feeding therapy and/or to refer your child for services at Easter Seals Greater Houston’s Children’s Therapy Program, please call 713-838-9050 ext. 381. The clinic is located at 4888 Loop Central South, Houston, Texas 77081.

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Fitting Independence in the Budget

When Easter Seals Greater Houston Housing and Financial Coach Carmen Phillips first met “C”, she was transitioning out of homelessness and back into her first apartment.  Due to her disability and low wages, C has always needed a roommate in order to afford housing.  Unfortunately, depending on a roommate to fulfill their half of the obligations proved detrimental to C’s financial stability and left her homeless yet again.  After several months of homelessness, she eventually managed to find a new roommate she had met at the local shelter and they got a new apartment. Despite some of C’s objections about saving money, she and Carmen continued to work together to build up her savings account just in case she found herself in a similar position in the future.  Because she receives disability and works part-time, it was hard for her to rationalize why she needed so much money in her savings account, since her disability was guaranteed.  Well, fast-forward to COVID-19.  Unfortunately, C was laid off from her part-time job and the very same month, her disability benefits were suspended due to some type of error regarding her wages.  She was now stuck in an apartment lease with zero income.  Fortunately, she had her savings to fall back on until her disability benefits were re-instated.  Throughout the pandemic, with the help of her stimulus checks and her unemployment, C managed to pay her rent, pay off her credit cards and build her savings up to $17,000. 

However, shortly thereafter, C’s roommate left unexpectedly, leaving her stranded with a 2 bedroom apartment and bills to pay. Fortunately, she had her savings account and decided to make a drastic move.  She took a portion of her savings and purchased a 5th Wheel Travel Trailer in order to have a home of her own.  C now owns her own place, does not have to depend on a roommate to split housing costs, pays less renting her RV spot than her apartment and has drastically lowered her electric bill, all while retaining $5,000 in her savings account.  C hopes to eventually save up her cash and purchase a small lot in order to completely eliminate paying monthly rent to anyone.

Learn more about Easter Seals Greater Houston’s free resources for Financial Education, Homebuyer Education Services & Public Benefits. Our agency also has programs for Veterans, Service Members, and Military-Connected Families here.

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Letter from the Heart

To our friends at Easter Seals Greater Houston, I would like to thank you for the support you have given to our family as well as to many other families like ours. Your great contribution to many families like ours is extremely helpful, we are very grateful for the support that the Easter Seals Respite Program has given and this makes our life and work easier with our children and other families in special need. Respite Blog Careigiver for November spanish translation

Your work is not simply an office job but a way to be good human beings and in the same way, it will be rewarded with the best payment that they could accrue which is the blessing of God. You are the ones who who give hope to every person who labors with disability and makes things possible and others to relax, breathe and sit down with the support they need.

Hoping that these few but grateful words will come to your hearts, I am very grateful to them, that God will continue to bless them.

-Valentin, Easter Seals Respite Client

Respite Services provides relief options to parents who provide ongoing care of their family member who has a disability. Many parents of children and adults with disabilities have low incomes and cannot afford to hire providers to take time away from their children. Many people with disabilities require 24-hour, around-the-clock supervision, attention and care. This continuous demand becomes a tremendous drain on caregivers emotionally, physically and mentally-this care will remain constant as they grow older. Consequently, families of children with disabilities are at high risk for divorce, substance abuse and child abuse because of the continuing stress of caring for the child with disabilities. Respite care is an assistance program to parents, but just as importantly, is a prevention program aimed at stopping some of the social problems that can result from the tremendous demands made on families due to the disabilities of their child or the institutionalization of the family member with a disability. For more information click here. This important program is largely possible because of the generosity of our community, please consider donating today.

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The Wonders of Early Childhood Intervention

To the Easter Seals ECI Infant Program – the Woodlands team. Way to go Jeannie, Lisa, and Nicola!

Our experience with Easter Seals Early Childhood Intervention Program was a very positive one. From the very beginning (our daycare suggested we reach out when my son was about 11 months old). little boyAustin’s initial evaluation was a lot to take in, but they explained everything they were doing (and more importantly, WHY), and what the process would look like to begin services and what we should expect (this all before we ever had a diagnosis too)… over the past two years, I have relied heavily on Jeannie and Lisa’s guidance on best practices for us to be using with Austin at home, helpful toys/exercises/etc., and celebrated almost every milestone with us along the way. Easter Seals ECI Staff have been more than flexible with my often hectic work schedule (even when I sometimes forget to call and let them know Austin wouldn’t be at daycare for whatever doc appointment/illness/trip 🤦🏻‍♀️), and I loved getting feedback/photos/progress updates from Lisa after Occupational Therapy sessions. I, of course, wish they could have worked with Austin even more than what was available, but ECI has provided an incredible foundation for Austin’s development and future success. Thank you doesn’t seem like enough in this case and I’m quite sad that it’s come to an end.

Austins Mom – Easter Seals ECI Client

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The Power of a Sticky Note

Sitting here the day before my 25th anniversary of working for Easter Seals Greater Houston and I am both amazed and bewildered at the same time.

…Amazed. Amazed because of our community of volunteers, donors, staff, foundations, corporate sponsors and partners and the amazing feat we just accomplished in the midst of a pandemic with our Walk With Me Event.

Bewildered…because of #StayAtHome, the Economy and oil and gas, hurricane season, protests, diversity, questions of inclusion, and yes even the murder hornets!

I think the two go hand in hand…at least in my world.  I think I am a sticky note! I have “stuck with” Easter Seals Greater Houston through thick and thin. I started when we had 30 employees, 3 maybe 4 programs, several small but meaningful events and a 1MM dollar budget.  We have evolved over the years into a 25MM dollar budget, more than 240 employees, 12 plus programs and 1 historic fundraiser called Walk With Me that just grossed over $776,000. You would think we are breathing a sigh of relief.  No, we will always be holding our breath.

In my 25 years, I truly thought that I had seen it all.  The fall of Enron (a lesson for all nonprofit organizations in Houston), Tropical Storm Alison, some great booms, a lot of busts, Katrina, Rita, Ike, Memorial Day Flood and every one thereafter, Harvey, Imelda, government budget cuts (over and over again to early intervention, Medicaid), all of which have had us on a steady learning curve.  We served the forgotten and the UN-able when it originally came to evacuation. We have a handle on that and we definitely have it down when it comes to emergency assistance.  Thankfully, we have developed some incredible partnerships and collaborations.  They are sticky notes too.  We have learned how to best serve the most vulnerable since we began our work in 1947…whew…then, COVID19, a completely new historic learning curve.

Thankfully, technology has evolved to the point where we can continue to do our work and our mission…virtual or not. Our staff and clients have always been aware of the ways in which technology can assist our clients. Which leads me to reflect on diversity, inclusion, and disability. I have read two extremely pertinent quotes in the last few days. The first – “Work from home was never a privilege for people with disabilities.” Think about that one for a hot minute. And, the second – “We all have a part in creating a more equal and just world.” 

When I started the percentage of donations supporting disability and mental health probably wasn’t even calculated because it really didn’t figure into the equation. Now we know, TODAY less than 5% of charitable giving is directed to disability.  Awareness of disabilities today is vast compared to 1995 in large part due to the increased understanding of the autism spectrum and because of social media.  We have always been proud of those that “stuck with us” and those numbers are thankfully much larger now. More sticky notes. Children I have watched grow up volunteering who are now going into disability law, therapeutic and social work. Even more of them, regardless of where they go, carry us in their hearts.  Carrying the message of diversity (and yes, disability fits in there) and inclusion wherever they go, which of course, brings us to today. AND, the companies – our sponsors and partners – that know that disability is a part of the diversity and inclusion conversation.  Employee Resource Groups, Corporate Social Responsibility – used to only be words – now they are actions.  TODAY I truly believe they will be even stronger actions.  Actions by all of us–individuals, parents, families, companies, volunteer groups, and schools.  

There you go. All in all a pad of sticky notes.  Some can lose their stickiness but we keep them maybe use a little tape to rearrange, some fall off to never be applied again, some stay on our desks forever and we don’t even see them, some have water stains, some are wrinkled or torn, and they are a beautiful variety of colors and sizes. Regardless of where you fall as a sticky note – thank you for being one of ours.  The list is long of thanks to our staff, volunteers, donors, corporations, walkers, caregivers, clients, collaborative partners, foundations. I hope in reading this you recognize yourself. 

The picture here is of Robert Ryan, one of our Ambassadors of Walk With Me…Virtually. He just graduated on to public school from the Caroline School! I think this picture says it all. You don’t have to stick with us, but we are so grateful that you do.  For that right now in this community in an extraordinary time, we cannot thank you enough. 

Huge thanks to our incredible Walk With Me Virtually Sponsors and PartnersProsperity Bank and their staff, WithMerci Foundation, Alvarez and Marsal, Robert & Janice McNair Foundation, TEAM Inc., Texas Children’s Hospital, and more for sticking right there with us!

Kelly Klein
Development Director
Easter Seals Greater Houston

Click here to learn how YOU can be a sticky note for Easter Seals Greater Houston.

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Success and Virtual Services – Stories from our Staff and Clients

Adult Services/LEAD
With the current Coronavirus pandemic, causing shutdowns of businesses, limited access to resources, and just overall stress for every single person in the United States, the Easter Seals Greater Houston L.E.A.D. program is fighting back the stress with creativity in technology! By utilizing webcam access, we have still been able to meet with our adult program daily and covered many new ways to communicate. First step was showing all the tips and tricks with Facebook and how to create video conversations with their friends; allowing our clients to still stay as close as ever even during this time of social distancing. As we move forward, our next step has been creating a new activity calendar FULL of fun creative ways to stay busy, from virtual tours online to chair yoga YouTube videos. We have definitely been challenged by this pandemic, but it is not stopping us whatsoever. Having to think outside of the box has been the L.E.A.D.’s group specialty, and with everyone in this social crew working together, we are still making it the best part of our week. By using these amazing resources of technology, we are still able to function together as a team and continue to socialize just like before, just this time with a little distance.  Check out what we’ve produce here on our BridgingApps YouTube Channel!  From Rebecca, Adult Services LEAD Program

Camp, School, Therapy and More!
I was on the phone with a Buckaroo mom about the COVID-19 emergency funding; she was super appreciative. We started talking about her son, Bryson, who has come to Buckaroo– but it has always been a struggle for him to do a whole day of camp. Bryson has non-verbal autism and he does what HE wants to do (i.e. not a fan of buckaroo group activities, or listening), so he mostly came to Buckaroo for a couple hours each day to watch camp from the side. Mom said that for the first week of quarantine, Bryson stood at the door with his backpack every morning for 45 minutes because he wanted to go to school so badly. Nevertheless, she said that homeschooling has actually been amazing for them! He has been getting speech therapy over the phone, with mom consistently implementing the therapy because they are together all day. She said he has learned a few ASL signs and he is SO excited that he is able to communicate! It was a huge breakthrough for both of them; he realized that instead of just DOING what he wants, he gets what he wants easily if he does a sign for it! It warmed my heart that she would share that with me, and I am so glad that there is some positives coming out of quarantine, and we can’t wait to see him at Camp Buckaroo!  From Kenzie Richard, Camps, Easter Seals Greater Houston

Creativity and Patience – Children’s Therapy Program
“We wanted to have a family meal where everyone was sharing a nice homemade meal. Sounds pretty easy, but it wasn’t. We sought out a food therapy program to help with Edgar’s limited diet, his overeating tendencies, and his textural sensibilities. When Easter Seals started offering food therapy, we quickly signed Edgar up for it because there would be no force feeding involved, a big plus for my sweet sensitive child!

I have noticed that after starting the food therapy program with Alysia, Edgar has gone from eating a handful of foods to at least trying out different foods I never thought would be possible. I never expected results in such a short amount of time. Lettuce, strawberries, and even hamburger meat? Those foods seemed like a long shot…a goal for the long run. Yet here we are, months into the food therapy program and my child is opening up! Suddenly, sharing the same nice homemade meal with the family doesn’t seem as far-fetched as I had imagined last year!

I can honestly say that the food therapy in combination with other therapies including his occupational therapy with Alysia, Speech with Miaya, Ingrid with Music, his kindergarten teacher, his school assigned case worker, and even his school principal have all helped propel my son forward. Alysia, I can’t thank you enough! Your creativity and your patience with Edgar has shown in many areas and now with Food therapy, you have given us a gift our family will always cherish. Food is family and love! ” – -Doris, Parent, Client, Easter Seals Greater Houston, Children’s Therapy Program

 

 

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Pilot Program for Service Dogs… gone virtual..not to the dogs

My name is Bryan Cream and I am an Army Veteran who served eight years as a Chaplain Assistant. During my time, I served in many great units but I was lucky enough to serve my two tours in Afghanistan with the 101st Airborne Division. During Deployment, I do not recall any one specific event that caused damage to me physically. Overtime, my body deteriorated due to nothing more than I can explain as wear and tear. After eight years of climbing the ranks to E-6 or Staff Sergeant, I was Medically Discharged because my body had failed me. The next five years were very tough for me to accept my new life in the Civilian world.

As a Chaplain Assistant, I was responsible for ensuring the Soldiers and their families spiritual needs were met and that they maintained a level of mental strength and preparedness. Now, I am perceived as a Disabled Veteran and not able help myself. Through time and a lot of effort, I was able to accept and handle the mental impact of it all but now I am left with physical limitations that will certainly get worse with time.

Over the years, I dreamed of having a service dog to help me navigate life with the challenges that I am facing, but I never wanted to take a place from a Veteran that had Combat related injuries. Shortly after buying our first home, we found a beautiful Black Lab who we fell in love with and named her Lucie. We had her for about two months before I saw an ad from Easter Seals advertising their great program that offered a path to a Service Dog for Disabled Veterans. Not only did it offer training for Lucie but for myself as well.

The Easter Seals Pilot Service Dog Training Program has obviously gone virtual given the pandemic we are experiencing.  I am only halfway through this 10-week course; I am already seeing drastic changes and impressive results. Lucie has gone from a hyperactive puppy with a few basic commands to a 5-month-old puppy who I am able to trust in public.

The commands she is able to recognize and execute are sit, laydown, stay, wait, left, right, up, down and off. She is able to walk alongside a shopping cart in a public store without any issues. She is able to stay in the down position while I am twenty feet away for an extended period with multiple distractions.

Beyond the commands, I have learned to notice the small details and to listen to my dog. Building a bond with Lucie to make sure she knows where my next step or turn is. Allie (Easter Seals’ Trainer via My Service Dog) has been by Lucie, and my side throughout this course. Helping me see the small successes with Lucie and myself. She has taught me how to be patient with Lucie and most importantly, patient with myself through this training opportunity. Although, she is not quite a full-time service dog, I have faith that she will be there before too long. I look forward to working with Lucie some more and have her fully trained to be my companion in my any challenges I have to face.

Retired Staff Sergeant, Bryan Cream, Easter Seals Greater Houston Client

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Connecting Within the Veteran Community, Part 1: Client Focus

Easter Seals Greater Houston has done a wide variety of things for me. I am grateful for everything you all have done.  Before meeting with ESGH, I had done very little to connect to the Veterans community and the Veterans services that I am able to access because of my time in the Army.Veterans May

It has been a combination of effort from my mental health therapist, Amy Harkins, Jennifer Wright from the Service Dog Program and a few others who have helped me get tickets to concerts and other events.  I had an amazing time at the VetsAid concert.  I loved going to the Zoo for Walk With Me and I look forward to going again this year.  I even got connected to Give Vets a Smile at UT Dental and got some much-needed work done.  I plan to follow up with THRIVE (Easter Seals Financial Education Program) to keep working on my financial situation with Jenny Martinez.  I am thankful to be connected to the Veteran Food Pantry.  I tend to isolate so these activities mean the world to me.

I have the sense that there are puppet masters in the background at ESGH that are helping me out in ways that I don’t even really know about.  I have appreciated everything Jennifer Wright has done to keep the process going to get a service dog.  I do worry about some of the details of getting a service dog, but overall, I am very hopeful that having a service dog will help me explore and enjoy life to the fullest.  Having a dog will allow me to do things that I don’t do now.  A dog will open a door that I keep closed.  And a Service Dog will be a much-needed friend.  Jennifer has not given up on helping me get a service dog and I am so grateful that she has been persistent, on track, and motivated.  If she had given up, I would have given up a long time ago.

I know that talking (via Telehealth) to my therapist Amy has really helped me do things that I would not have done otherwise.  Talking has helped me to think about what I want to do.  I want to explore and see things in Houston.  Actually, one of the most helpful things we have done is meet in person.Veterans May 2  It was a very big step for me to start using Metro Lift so that I can meet in person.  Getting familiar with Metro Lift has opened up many opportunities for me.  Still, it is helpful that I can meet with my therapist by video when something gets off track.  Having you all in my corner has been my saving grace. 

 

Sincerely,

James Kittrell

Army Veteran

 

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High School High Tech Spotlight on Cali

Today we want to spotlight Cali, a high school senior from Willis High School who is finishing her senior year online and working nearly full time at Tractor Supply Company. Cali also makes time to participate remotely in our Easter Seals Greater Houston High School High Tech Program weekly chats and lessons despite her busy schedule.  Cali,  joined HSHT as a sophomore and was extremely nervous about her first mock interview day.  She had never had a job before nor had she ever applied for or interviewed for one.  As part of our curriculum, we teach students how to properly complete a job application, how to dress, how to write a resume and how to successfully ace their job interviews. 

“The past two years in the program helped me a lot,” Cali said. She aced her first job interview and has been employed with Tractor Supply Company for the past 9 months and is working hard to become a Team Lead after graduation.   As a high school senior, Cali has also taken on a leadership role within her HSHT campus group, walking around the room assisting underclassmen complete their job applications, resumes and even research careers.   At last months meeting, she came running into the room proudly waving her senior pictures, shouting “Miss, Miss! I never thought I would ever see this day!   I never thought I would graduate high school! ”

We are so very proud of our Cali Girl for all her hard work and dedication to school, her employer and to her community.  Cali is also part of the Willis HS Marching Band, FFA and raises and shows heifers through 4H.

Carmen Phillips, Montgomery County Program Coordinator, High School High Tech, Easter Seals Greater Houston

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