Tag Archives: easterseals

Embracing the New

“I did it.  I found his grave.  I talked with him for a long time.  There was no rush.  I gave him a cigarette right there on his headstone and we smoked and talked.  I got to say things that I have been waiting thirty years to say. It’s been thirty years almost to the day since I saw him. I told him that I am sorry I wasn’t there for him that night.  I told him that I know now it was not my fault that he died. 20190519 R.L. headstone image I have been carrying that around for a long time.  I realize that I can finally let that go.  I got the sense that he was there with me and I heard him say, “Just remember me.”  I know that he wants me to remember how he was a good friend and remember the good times that we had together.  It took a lot for me to touch his gravestone. I felt a wave of anxiety come over me.  And I stayed there until that feeling was gone.  At the end, I stood at attention and gave a salute to him.  I understand better now that I need to get out more, stop isolating.  I can open up and be myself.  I am able to say to myself, I want a life and I gotta step out and do that.  And I know that therapy has helped me.  It has helped to know that my ESGH therapist is rooting for me.  She helped me face my past.  At this point in my life, I am ready to embrace the new.”

Robert L.

Easter Seals Greater Houston, Veterans Mental Health Program

Leave a comment

Filed under Latest News, Uncategorized

Technology Bears No Age

Audra Success Story | Older Adult & Stroke Survivor Using Mobile Technology

Ms. Audra Evert is an amazing artist, and her home is covered with her colorful abstract paintings. She suffered a stroke some years ago, and she needed help using a desktop windows computer and a flip phone for her technology needs. Her interests include internet searches, emails, saving and sharing photos, creating word documents, and excel spreadsheets. A nephew of hers recently asked for her knowledge about the family. She developed a goal to create a family tree.

 ESGH BridgingApps digital trainer, Jana Rodriguez helped Audra research a few options to create a family tree and offered the free website service FamilyEcho.com. Together Jana helped Ms. Evert create her family tree, as seen in her printed copy. A copy was also sent via PDF to her nephew. She hopes to expand the details with more research on other family members. At the beginning of this journey she dreaded the thought of how difficult this task would be. She was so pleased with the ease and design which she described as “perfect”!

Audra owns a flip phone and has been frustrated with not knowing how to take photos and then share them with others. Jana of ESGH BridgingAPPS  program has been working on basic phone skills with Audra, who has been practicing manipulating photos on her phone.  She is learning how to take photos, rotate and crop them, and send them to friends and family via email.  She has been thrilled with her progress!

By: The BridgingApps Team, Easter Seals Greater Houston

Leave a comment

Filed under Latest News, Uncategorized

Celebrating World Down Syndrome Day

1 in 762 people are born with Down syndrome and there are approximately 6,000 people with Down syndrome in greater Houston. Children and adults alike with Down syndrome are benefiting from our ECI, Caroline School, playgroups, BridgingApps, Adult Program and more. Here is just an example of one of our many success stories!

Adri’s journey continued on a smooth path as she made steady progress, gaining independence in all areas of development. Adri 1 She was eating a larger variety of foods (also receiving additional nutrition through her G-button), began walking independently, and using more words and phrases to communicate.  At 3 years old, Adri graduated from the Easter Seals ECI (Early Childhood Intervention) program, and transitioned easily into the PPCD (Preschool Program for Children with Disabilities) class with her local school district.

As most journeys hit challenges along the way, Adri’s journey took a terrifying turn.  In January 2018, Adri became very ill.  Her parents made two trips to the hospital ER one weekend, where she was diagnosed with “just a stomach virus”.  Her health did not improve.  When at her pediatrician’s office on Monday, Adri’s left arm began jerking.  Suspecting she was having seizures, Adri was transported by ambulance, for her third trip to the ER.  After given numerous tests, and losing the ability to lift her left arm, Adri was taken, by ambulance, to UTMB.  The EEG and MRI indicated no seizures, but her fever continued, and her condition worsened.  Since no neurologist was on-site, Texas Children’s Hospital sent their ambulance to pick her up.  Adri was intubated before she left in that ambulance.  Once she arrived at Texas Children’s, Adri was taken straight to the ICU.

After multiple tests, on January 25th, the test results showed Adri had Adenol virus which “mimics” the flu.  Children with Down Syndrome may have weakened immune systems, and Adri became susceptible to the virus.  The Adenol virus triggered Moya Moya, a common, though not frequent, underlying condition sometimes present with Down Syndrome.Adri 3  Moya Moya caused progressing restricted blood flow to the brain, depriving certain areas of the brain of oxygen and glucose.  The MRA and MRB tests revealed Adri suffered a massive stroke to the right side of her brain.  Adri lost the use of her left side of her body – she was unable to use her left leg, left arm, and left hand.  Her speech was also affected.  Adri began rehab therapy, to regain strength, and use of the left side of her body.  During her month-long stay at Texas Children’s Hospital, Adri also had brain surgery on February 19th.  The neurosurgeon tried to create new blood vessels on the right side of her brain.  Her parents endured this traumatic time through their faith, and support from family and friends. As her mom stated, “We had a lot of people praying for her.”  Adri was discharged on March 8th.  In order to regain her strength, and focus on recovery from her stroke, Adri stayed home from school and began receiving out-patient therapy.  She had OT (Occupational Therapy) and Speech Therapy two times per week, and PT (Physical Therapy) one time per week.

Last August, with the start of a new school year, Adri began the next phase of her journey.  Today, she walks independently again (with a slight drag of her left foot), feeds herself a variety of food (still receiving additional nutrition from her G-button with 4 feedings a day),  uses 3-4 word sentences to communicate what she wants, uses her left hand as a “helper hand”, and knows her letters, most shapes and colors, and counts to 20.  Her dad commented Adri has had a strong will, even from birth, and is “feisty”, which helped her recover.  She has surprised her therapists with how well she is doing.  Adri attends PPCD Monday through Friday from 8:25-11:55 am, and receives out-patient therapy two times per week.  Mom reported Adri loves riding the bus home from school, and enjoys “tooting the horn” to let mom know she’s home.  Adri loves to sing, dance, and watch YouTube videos.  Her mom added she’s “very funny”.  Adri has fun with hats, dressing up, and looking in the mirror.  She comes up with new words and sentences every day.  Adri greets people, says what she wants, and still gives amazing hugs!  On her last brain angiogram in the Fall of 2018, the neurosurgeon stated the brain image now shows “no stroke”, and the medical team can’t explain it.

When requested to look back where their journey began, Adri’s dad reflected on their family’s time with the Easter Seals Infant / ECI program:

     To really come home with a child with Down syndrome….well, one of the most unexpected things in our lives.  We all cried.  To receive help from Easter Seals Infant Program was great!  Really was a tremendous help.  At first, we thought we were all alone with this.  The ECI staff became like family.  They didn’t just do their sessions.  They listened to what we needed.  Therapists recommended what Adri needed, then helped us resource it.  We really miss them.  They were a big time help with her progress and almost entirely the reason Adri was school-ready for PPCD. Adri 2

Adri’s dad said he wanted to offer this advice to parents of children with Down syndrome:  “Pack your patience.  Really take time to get to know your child.”  That is sound advice for parents of all children.  Adri’s parents’ high expectations for Adri have enabled her to progress in her development, recover from a massive stroke, and look forward to the next steps of her continuing journey.

Sharon Mott, EIS/Transition and Outreach Coordinator, Easter Seals Greater Houston

Leave a comment

Filed under Latest News

Making The First Five Count Through Early Intervention Services

Ella:

Ella has been enrolled in the Easter Seals Greater Houston ECI/Infant Program for about 6 months. Per one of the therapists on her Infant Program team –  visits started with tantrums, then evolved into stoic silence. Mom swore she said about 10-15 words, but the team never heard them the first month or so. Now, this lovely chatter box has a vocabulary that is growing every day. Ella is combining words to make 2-4 word sentences on her own, and parrots everything she hears. She is able to sit and attend to learning and play activities for 30+ minutes without getting distracted, and has some of the most creative pretend play we have seen.

 Mica:

We have been utilizing the services of the ECI/Infant Program at Easter Seals of Greater Houston over the past year for our son Mica, who was diagnosed at birth with Trisomy 21.   Mica’s progress has been wonderful so far, thanks to the team of dedicated therapists at Easter Seals.  Mica’s physical therapist Charisse as well as his nutritionist Thein have been instrumental in his growth and development.  His occupational therapist Christy as well as speech his therapist Bridget are working on improving his skills. My wife and I are very pleased with the team’s dedicated and professional approach in dealing with Mica.  For anyone with a child with a disability in the Houston area, we highly recommend the ECI/Infant Program Easter Seals as they do a wonderful job.

 The Dawkins Family:

“Thanks to Easter Seals Greater Houston’s ECI Program and wonderful staff our son, Cavani, went from no communication at all, to using words and sign language to express his needs to us. Easter Seal’s knowledgeable therapists helped our child, and our family, transition from in home therapy to a public school that meet our child’s needs. We truly can not say enough good things about Easter Seals and their ECI/Infant Therapy Program.”
– The Dawkins Family

WHAT IS ECI – EARLY CHILDHOOD INTERVENTION AND WHY IS IT NECESSARY?

WHAT IS MAKE THE FIRST FIVE COUNT AND HOW CAN IT HELP YOUR CHILD?

WHAT IS THE ASQ (AGES AND STAGES QUESTIONNAIRE) AND HOW CAN IT HELP?

Want more info? Info@eastersealshouston.org

Leave a comment

Filed under Latest News