Tag Archives: ECI

Kanan and His Amazing #ECI Team!

I am the mother of a precious one year old, Kanan Moore. Kanan suffered an oxygen brain injury last year in August, and was released from Texas Children’s Hospital the following October. We were blessed with Easter SealsEarly Childhood Intervention services and I could not ask for a better therapy plan, our team of staff was awesome in every way. It started with an evaluation to see if Kanan would qualify for services. The two Early Intervention Specialist that came were so nice and respectful, they made me feel my child was in the best hands. A week later therapy services started with Mrs. Charisse, a PT and she is the best. I knew thCanan ECIen that my son was in the best hands. After two months, Mrs. Shama and occupational therapy were added to Kanan’s schedule; and she is equally amazing. Two weeks later – speech therapy started with Ms. Bridget. We have the best therapy team a mother could ask for – they are the best support group and love my son. I can see it as they work with him. Everything that the ladies teach me I apply it with my son.

The things that the doctor said that my son would never do – Mrs. Charisse, Mrs. Sharma, Ms. Bridget and Kanan proved them wrong. Easter Seals Greater Houston is the best organization that anyone would be lucky to be a part of and I thank you for sending me such amazing and talented staff to work with my son. I tell them every day how awesome they are! They’re not only here for my son, they are here for me as well. I couldn’t ask for a better support system. As I am writing this I am shedding tears because I didn’t think my son would speak words and now he is up to five words. I did not think my son would stand and he’s now standing, crawling and we’re also working on walking. His left hand was non-mobile/non-responsive but since working with Mrs. Shama my son is now using his left hand to eat bacon! The Easter Seals Infant/ECI Program is the best program that there is and I thank you every day. We look forward to every visit, whether in person or via #Telehealth!

Thank you, Belen, Kanan’s mommy

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Together We Did It!

First, as a family we’d like to say a big thank you to the Easter Seals Early Childhood Intervention program team that has been part of the process over the almost 3 years working with our twins, Noah and Roman. Together WE DID IT! WE are doing it! They are achieving so much and catching up to developmental milestones. It’s been wonderful to see them thriving and meeting goals.ECI blog for february pic 3

Noah and Roman were born at 30 weeks unexpectedly. As a parent that can be a scary thing not knowing the outcome of your babies. I did not have the opportunity to see, nor hold my babies once they were both delivered and they stayed in the NICU for about 2 months and received therapy services thru the hospital. Luckily, we were referred to Easter Seals ECI for the opportunity to have continued care for our little guys. Thru ECI we have been given more of the tools necessary to help our boys develop and grow.

Our service coordinator, Roshanda, has been very helpful in educating us about options we have for different services thru Easter Seals and ECI and making sure needs have been met. She always has open communication with me and answers questions or concerns we may have. Roshanda is very pleasant to work with and I feel like she genuinely cares.

The twins both started physical therapy with Melissa. It was a bittersweet moment being discharged from Easter Seals Houston’s PT services BUT it was a blessing they reached all their goals and physical developmental milestones! Thank you Melissa!

The boys have been receiving Easter Seals Houston’s occupational therapy services with Gumaro. We thank you Gumaro for getting the boys on track.  Always having patience with them during the good days and the bad days.

Speech Therapy through Easter Seals is so much fun for Noah and Roman most of the time(if they’re in a good mood) the vocabulary has gone from grunts and crying to pointing, using single words, 2 and even some 3 word phrases. They definitely like to show off that they can communicate with mom and the family now. Thank you Tate! Also thank you to Michelle during SLP sessions with Noah when he had a tongue tie. You were so helpful to us. You introduced him with his 1st favorite book “Never Touch a Dragon” which he still loves.

The twins also receive SST (Specialized Skills Training) with Lakeisha. They have so much fun with all the therapists, but they really enjoy Lakeisha. They don’t even realize she’s working with them and think it is play time the whole session! ECI blog for february pic 2

You all have watched our little guys have their best days and worst days. Thank you to the team of everyone who has helped us, help them, along the way thus far! These little guys have come a long way and the support and services thru Easter Seals ECI I truly feel like has gotten them on track to where they are now!

Thank you so much!

-Noah, Roman and Family

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There Will Never Be Enough ” Thank You’s”

Our baby, Nicolas was born with Arthrogryposis, this condition causes many joints to be stiff and crooked at birth. This was a surprise since the doctor didn’t catch this in the ultrasounds.  It was a pill hard to swallow as every parent expects their baby to be healthy. Nicolas was a tight little ball who could not stretch out. The Arthrogryposis on Nicolas affected him in his elbows, wrists, 10 fingers, knees, and complex clubfeet. The doctors weren’t sure if he was going to be able to walk. He was in need of a lot of medical care including surgeries, cast, and therapy.

We heard about Easter Seals Greater Houston and their program called Early Childhood Intervention that could help us give therapy to Nicolas from home. We called and after a few weeks, they were at home making the first evaluation. After this evaluation, they told us Nicolas qualified and they would start coming to our home for PT, OT, and ST.

Every single lady from this program has changed our lives in so many ways. They have shown this love for Nico since the day they met him. They were at my house every week since my son was 2 months old until 3 years old.

1The OT therapy started with DeeDee, she is a very sweet lady who won’t stop smiling. Nico was so happy to see her. She helped Nico with his hands, shoulders, elbows, and wrists doing stretching. She taught Nico to use his fingers to grab toys, small balls, push bottoms, and play with his cars. She also did stretching on a big ball. She became a friend of our family. She brought us hope.

The PT started with Melanie. She helped Nico with stretching his lower body. She helped us when we were having problems with Nico’s braces. She helped Nico sit and start bearing weight, she even put Nico in his first gait trainer.

After that, we had to move to Houston. The ECI program rescheduled and reassigned within Easter Seals and did everything for us and after a couple of weeks, they started coming to our new apartment.

The PT continued with Cristy. My family will never forget this lady. When Nico was born the doctors weren’t sure if he was going to walk. She helped Nico in so many ways. She made him stronger. She was always very energetic and happy. She helped Nico walk his first steps on his walker. And then the unimaginable happened. She said Nico was ready to walk by himself. So Nico took his first steps with her at 20 months old. I have that memory in my mind like it was yesterday. Everybody was so happy and in tears. It was the best moment in our lives. We are so thankful for her. After that she taught Nico to go up and down small steps. She taught Nico to kick a ball. She taught Nico to go from a sitting position to standing. She will be always a special person in our lives.

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The OT continued with Sherry. She helped Nico with fine motor skills. Nico got better grabbing things. Sherry also taught Nico colors, numbers, and animal names. She was always bringing new toys to keep Nico learning new things every therapy session.

For ST, both speech pathologists were great teaching Nico how to blow bubbles and saying new words like pop, mom and daddy.  They read books to Nico and played with him to teach him even more new words.

We moved again into a new house and with the move, we again got new therapists within Easter Seals.

Lisa started with Nico for OT. She always said Nico was super smart. She encouraged Nico’s Spanish. She was very funny and always made us laugh. She taught Nico to draw lines, circles, play with play-doh and so much more. She was always a spark of joy for us.

3Britney started with Speech. She taught Nico so many new words. Nico’s first sentence was thanks to Britney. She was always finding funny ways to made Nico speak. She helped me a lot too. She was the one who made the transition of Nico to the School District.

Nico also started speech group therapy. He loved this therapy. He was so happy to go and see the other kids. This therapy was really fun. Nico learned how to interact with other kids, and how to follow instructions. He learned a lot of new words and how to answer questions. He learned to interact with his teachers.

I can’t say thank you enough to Easter Seals and this ECI program and all people working in it. They changed our lives in so many ways. They went beyond just being therapists. They made us feel like family. They were there in one of the sad moments of our lives and they brought us hope.  Nicolas is doing so well thanks to all these ladies. We love you and will never forget you. Thank you very much!

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By: Nicolas’s Mom

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How ECI Changed Brianna’s Life

Brianna was 17 months old when she had her first Easter Seals Early Childhood Intervention evaluation.  Mom had made the referral as she had concerns with stiffness, lack of use of the left hand, and Brianna not walking.  During the evaluation, Brianna was inquisitive, yet determined.  She wanted to do things her way and she was not about to let the ECI team tell her what to and she made sure the ECI team knew this.  During the initial evaluation, the Early Childhood Intervention team noticed that Brianna was using her right side more than her left side and asked mom about Brianna’s medical history.  According to mom, pregnancy and labor were uncomplicated and her pediatrician had never expressed any concerns. 2019 ECI SW picBrianna qualified based on delays in several areas of development, but primarily motor functions.  Due to the ECI team’s concern with Brianna using her right side more than the left, she was referred to a neurologist and it was then that Brianna was diagnosed with hemiparesis.  At first, mom did not fully understand the diagnosis, but the ECI team made sure to provide her with information that she was able to understand.  As the therapists and EIS worked with Brianna, they quickly realized that Brianna was bright and very determined.  The ECI providers were constantly building on Brianna’s strengths in order to get her to meet new goals and mom was happy with the progress Brianna was making.  Mom always made sure she never missed a session, even when she was pregnant with her second child, and if she was not able to present for Brianna’s sessions, she made sure step dad was present.  Fast forward to Brianna graduating from ECI at age 3.  Brianna is walking, talking, following directions, and pointing to pictures, body parts, colors, and shapes.  During Brianna’s last session, mom expressed her gratitude for all her ECI service providers Priscilla Lewis, Alejandra Torres, Lindsay Wild, Christy Lewis, Judy Rodriguez, and Lillie Medellin.  Mom expressed how grateful she was to ECI as she had learned a lot during the time she was present for the therapy sessions.  She further stated that when Brianna was initially diagnosed with hemiparesis, she faulted herself and felt guilty for Brianna having been diagnosed, but with the help of all her ECI team, she quickly learned it was not her fault and she learned the many ways she could help Brianna.  Mom also stated she felt supported throughout Brianna’s participation in ECI and had it not been for ECI, they might have never gotten a diagnosis for Brianna which would have meant that Brianna would not have made the progress she made while in ECI.   Brianna is now happily participating in a PPCD program with Alief ISD and we are sure she is just as determined as she was during her ECI participation.  

Easter Seals Greater Houston, SouthWest ECI Team

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They Grow Up So Fast

“He is talking more and more every single day!  He’s gotten a lot of boo boos and I always kiss him where he got hurt and say “all better Jakey”.  He now kisses me and says, “all better mommy”.  He’s definitely growing up!  Andrea had a cap and gown for his ESGH  ECI graduation.  I just wanted to thank you again for all your help!!  Jacob and I truly appreciate it tremendously!!” Screenshot_20190618-124740_Messages

-Jacobs Mom

Easter Seals ECI Infant Development program is parent-driven and focuses on enhancing the development of children ages birth to 36 months with developmental delays or disabilities. It is our goal to give families the tools they need to make a significant impact on the development of their children.

We provide families with certified or licensed professionals who come into the child’s natural environment, as a part of the routine where the child learns, plays and lives, and use their skills to help in the progression of reaching the child’s developmental milestones. At the same time the therapists are modeling and teaching the parent/caregiver the skills needed to work by themselves with the child. We believe that parents/caregivers are the most important influences in a child’s life and should be an active player in their child’s development.

Every child who qualifies for the program will be assigned a service coordinator who will coordinate all the individualized services for the child in addition to being the main point of contact for the family. Other services provided may include physical therapy, occupational therapy, speech therapy, developmental services, nutrition services, respite services, and assistive technology assistance. If there is a concern about vision or hearing, we will make referrals to the appropriate location to see that your child’s needs are being met.

Sharon Mott, Easter Seals Greater Houston,  Transition and Outreach Coordinator, ECI Infant Program

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The Important of Early Childhood Intervention #ECIWORKS

Rose was adopted from China in November of 2018, at the age of 33 months.  She has Down syndrome, and spent the first 33 months of her life laying in a crib, with very little human interaction.  As a consequence, she is severely delayed in her overall development, and has very, very low muscle tone.  Because of her age, Rose was only able to receive services through Early Childhood  Intervention (ECI) for two months.  Lacy Alvarado, our service coordinator from Easter Seals Greater Houston’s ECI Program, made sure that Rose had the best therapeutic intervention she could possibly get during those two month through the Brazos Valley team (PT, OT, Case Management, Nutritional services, Speech and more).  In addition to working with Rose every week on a wide range of developmental goals, the ESGH BV Team provided us with invaluable advice, and directed us to all the best service providers to meet Rose’s needs.  With their help, Rose has made amazing progress, meeting many of her goals each and every week.  Before starting with ECI, Rose had very limited usage of her left side, she couldn’t sit without bracing herself on her legs, and was completely unable to feed herself.  In just two short months, Rose is now using her left hand and arm to complete all kinds of tasks, she can sit up straight without using her arms to brace herself, she is able to bring food to her mouth for self-feeding, she is beginning to use her arms and legs to “army crawl”, and she is learning how to follow simple directions.

 

With the help of Jana Aguilar, her physical therapist through Easter Seals Houston’s ECI Program, Rose has discovered that she has legs, and is beginning to bear weight on them, moving one step closer to eventually crawling and walking.  We are so grateful for the Brazos Valley Team’s help through the Easter SealsECI Program, as they have set Rose up for great success as she continues to grow and develop.  And having these services provided in our home has been extremely important for Rose, allowing her to work with Lacy and Jana in a familiar place.  Coming from years of neglect in a foreign institution has made Rose very fearful of unfamiliar surroundings, and very easily overstimulated by new people and places.  So having Lacy and Jana come to our home was vital to her success.  We will be forever grateful to Easter Seals Greater Houston / ECI for beginning Rose’s journey of healing and development in such an amazing way, and we will the team so very much.

Rose’s Mom

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Celebrating World Down Syndrome Day

1 in 762 people are born with Down syndrome and there are approximately 6,000 people with Down syndrome in greater Houston. Children and adults alike with Down syndrome are benefiting from our ECI, Caroline School, playgroups, BridgingApps, Adult Program and more. Here is just an example of one of our many success stories!

Adri’s journey continued on a smooth path as she made steady progress, gaining independence in all areas of development. Adri 1 She was eating a larger variety of foods (also receiving additional nutrition through her G-button), began walking independently, and using more words and phrases to communicate.  At 3 years old, Adri graduated from the Easter Seals ECI (Early Childhood Intervention) program, and transitioned easily into the PPCD (Preschool Program for Children with Disabilities) class with her local school district.

As most journeys hit challenges along the way, Adri’s journey took a terrifying turn.  In January 2018, Adri became very ill.  Her parents made two trips to the hospital ER one weekend, where she was diagnosed with “just a stomach virus”.  Her health did not improve.  When at her pediatrician’s office on Monday, Adri’s left arm began jerking.  Suspecting she was having seizures, Adri was transported by ambulance, for her third trip to the ER.  After given numerous tests, and losing the ability to lift her left arm, Adri was taken, by ambulance, to UTMB.  The EEG and MRI indicated no seizures, but her fever continued, and her condition worsened.  Since no neurologist was on-site, Texas Children’s Hospital sent their ambulance to pick her up.  Adri was intubated before she left in that ambulance.  Once she arrived at Texas Children’s, Adri was taken straight to the ICU.

After multiple tests, on January 25th, the test results showed Adri had Adenol virus which “mimics” the flu.  Children with Down Syndrome may have weakened immune systems, and Adri became susceptible to the virus.  The Adenol virus triggered Moya Moya, a common, though not frequent, underlying condition sometimes present with Down Syndrome.Adri 3  Moya Moya caused progressing restricted blood flow to the brain, depriving certain areas of the brain of oxygen and glucose.  The MRA and MRB tests revealed Adri suffered a massive stroke to the right side of her brain.  Adri lost the use of her left side of her body – she was unable to use her left leg, left arm, and left hand.  Her speech was also affected.  Adri began rehab therapy, to regain strength, and use of the left side of her body.  During her month-long stay at Texas Children’s Hospital, Adri also had brain surgery on February 19th.  The neurosurgeon tried to create new blood vessels on the right side of her brain.  Her parents endured this traumatic time through their faith, and support from family and friends. As her mom stated, “We had a lot of people praying for her.”  Adri was discharged on March 8th.  In order to regain her strength, and focus on recovery from her stroke, Adri stayed home from school and began receiving out-patient therapy.  She had OT (Occupational Therapy) and Speech Therapy two times per week, and PT (Physical Therapy) one time per week.

Last August, with the start of a new school year, Adri began the next phase of her journey.  Today, she walks independently again (with a slight drag of her left foot), feeds herself a variety of food (still receiving additional nutrition from her G-button with 4 feedings a day),  uses 3-4 word sentences to communicate what she wants, uses her left hand as a “helper hand”, and knows her letters, most shapes and colors, and counts to 20.  Her dad commented Adri has had a strong will, even from birth, and is “feisty”, which helped her recover.  She has surprised her therapists with how well she is doing.  Adri attends PPCD Monday through Friday from 8:25-11:55 am, and receives out-patient therapy two times per week.  Mom reported Adri loves riding the bus home from school, and enjoys “tooting the horn” to let mom know she’s home.  Adri loves to sing, dance, and watch YouTube videos.  Her mom added she’s “very funny”.  Adri has fun with hats, dressing up, and looking in the mirror.  She comes up with new words and sentences every day.  Adri greets people, says what she wants, and still gives amazing hugs!  On her last brain angiogram in the Fall of 2018, the neurosurgeon stated the brain image now shows “no stroke”, and the medical team can’t explain it.

When requested to look back where their journey began, Adri’s dad reflected on their family’s time with the Easter Seals Infant / ECI program:

     To really come home with a child with Down syndrome….well, one of the most unexpected things in our lives.  We all cried.  To receive help from Easter Seals Infant Program was great!  Really was a tremendous help.  At first, we thought we were all alone with this.  The ECI staff became like family.  They didn’t just do their sessions.  They listened to what we needed.  Therapists recommended what Adri needed, then helped us resource it.  We really miss them.  They were a big time help with her progress and almost entirely the reason Adri was school-ready for PPCD. Adri 2

Adri’s dad said he wanted to offer this advice to parents of children with Down syndrome:  “Pack your patience.  Really take time to get to know your child.”  That is sound advice for parents of all children.  Adri’s parents’ high expectations for Adri have enabled her to progress in her development, recover from a massive stroke, and look forward to the next steps of her continuing journey.

Sharon Mott, EIS/Transition and Outreach Coordinator, Easter Seals Greater Houston

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