Tag Archives: family

Miraculous Little Melody

The following was written by an Easter Seals Greater Houston client parent whose adorable little girl is participating in the Early Childhood Intervention Program.

Meet Melody! She is the baby of her family and the youngest of three girls. And she has each of us wrapped around each one of her precious, short, little fingers.

Melody has been a surprise from day one. It was a surprise to find out that we were expecting again at that time and even more of a surprise when we received a prenatal Down Syndrome diagnosis at 10 weeks of pregnancy. Again and again, during her development in the womb we came close to losing her, but each time she pulled through. God protected her. Knowing she would be born with multiple heart issues, we carefully planned her birth at a trusted hospital where her care team, whom we worked with during pregnancy, was ready and waiting for the big day. I was not expected to go past 36 baby Melody eci 2017 pic 2weeks of pregnancy but again Melody surprised us and waited until just two hours past her due date to make a shockingly fast and extremely dramatic appearance in her Mama’s bathtub at two in the morning with only her mommy and Daddy present. No time to get to the hospital and we barely had 911 on the phone when she decided to join us in great haste. There she was, our beautiful little baby with tons of curly dark brown hair and gorgeous brown eyes. It was a terrifying experience but thrilling to finally meet her! Talk about surprising!! By our God’s grace she was born safely and pinked up and started breathing on her own right away. It took 45 minutes for an ambulance to reach us and in that time we just held her wrapped up in a towel, cried and prayed.

We had had lots of time to prepare since we had an early prenatal diagnosis and so while she was still in the NICU we made contact with Easter Seals Greater Houston’s Early Childhood Intervention and requested an evaluation for as soon as possible once she was discharged. Those days were so very exhausting with all of the feeding difficulties she had so I cannot remember the exact age that she was evaluated by these caring people with Easter Seals’ ECI program but I do know that it was swift and we started both physical and occupational therapy right away. Melody has been such a little warrior princess all along and it has been thrilling to watch her meet milestone after milestone, while we have faithfully worked​alongside our therapists. Even though for the first six baby Melody eci 2017 pic 1months she had two holes in her heart (as well as two other heart issues) multiple illnesses, both a lip and tongue tie (which were both revised at around eight months old) and serious feeding struggles, Melody continues to surprise and wow us; like when she suddenly decided to start breastfeeding at eight and a half months old when her mama had given up the dream of getting to share that bond with her. She nursed for six weeks and then she was done but those were priceless times.

She is truly such an incredible gift from God! One we never even thought to ask for ourselves, but He graciously gave anyway, knowing that we needed her in our lives. She (and her doting big sisters) fills our every day with so much joy! Melody is currently just past fourteen months old and is sitting up beautifully, crawling as fast as lighting, pulling up on everything and showing some real interest in walking! She gives enormous hugs and kisses all day long, waves hello and goodbye, drinks through a straw like a champ, has learned how to fake laugh, blows the sweetest kisses, claps her darling, square shaped, little hands and says “Yay!”. She also says “Dada” all the time much to her father’s delight. She loves everyone and literally draws crowds wherever we go. Grocery shopping with her is a nightmare. Ha! Our family is so very thankful for the Easter Seals’ ECI program and look forward to each session we have with our wonderful therapist. Melody is going to do great things with her life and Easter Seals is making for some fantastic stepping stones.

Mrs. Davis, Early Childhood Intervention client parent, Easter Seals Greater Houston

 

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Appreciating Family Dinner

The following post was written by Easter Seals Greater Houston’s longtime Early Childhood Intervention Program Community Outreach and Program Training Coordinator, Kimberly Sporrer. It shows a mere glimpse of the positive impact her hard work has had on one of countless ECI clients and families she worked with over her 21 years of dedicated service.

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I met with one of my clients today, and Audrey, Liam’s mom, discussed how much progress Liam has made since being enrolled in Easter Seals Greater Houston’s Early Childhood Intervention Infant Program, commonly referred to as ECI.

 

Audrey reports that she is so pleased that Liam can now let her know when he is hungry instead of whining and pointing to various food items. Additionally, Mom discussed that Liam is now able to sit with the family to eat his meals. Before ECI, he would walk around the house while taking a few bites at a time, and he would throw tantrums if made to sit in his high chair. Mom said family dinners are now stress free and so enjoyable!

Mom also stated that she is grateful that she was given the infant pic 2strategies to create a more structured environment for Liam. She discussed that Liam’s ability to anticipate events during the day (lunch, naps, bath time, etc) results in less tantrums and a calmer demeanor.

She is excited and encouraged by the rapid pace of Liam’s progress and is looking forward to hitting new milestones soon!

Kimberly Sporrer, Early Childhood Intervention Infant Program, Easter Seals Greater Houston

Easter Seals Greater Houston’s ECI Program helps children ages birth to 36 months with disabilities and developmental delays achieve their goals in cognitive, social/emotional, communicative, adaptive and physical development. Learn more here.

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Pretty Eyes, Chubby Thighs

baby4Madalynn is an absolutely delightful little girl who gives a big smile to everyone she meets. Her mom, Amanda, is very pleased with Madalynn’s progress and wanted to share her story.

When she was just 10 weeks pregnant, Amanda found out her baby was going to be born with Down syndrome. Amanda researched on her own and tried to educate herself on the diagnosis. Amanda thought she was prepared, but when the diagnosis of Down syndrome was confirmed after Madalynn’s birth, she emotionally had to go through the acceptance process. She shared that the hospital staff at Texas Children’s Hospital was very helpful, educating her more about the diagnosis, and referring her to Early Childhood Intervention (ECI) of Easter Seals Greater Houston.

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The assessment team came out quickly, and Madalynn began receiving ECI services at about 2 weeks old. The newborn needed OT (Occupational Therapy) due to feeding concerns. Though Amanda was worried about the feeding issues, Amanda’s biggest concern for her sweet daughter was “she was not really connected”.  Madalynn was quiet and not noticing people around her.  After receiving help from Easter Seals’ ECI, and following through with the therapist’s suggestions, Amanda was excited to see Madalynn begin to progress.  At 2 ½ – 3 months old, Madalynn started connecting with everyone around her. Today, seeing Madalynn at about 10 months old, her mom is amazed at what she can do.  Amanda admits that she initially had low expectations due to the diagnosis.  After seeing what Madalynn was capable of, her mom did not want to hold her back.  “I include her in our daily life no matter what it is, from the beach to the park, she is there playing with us.” Madalynn now sits well independently, gets from her back into a sitting position, uses her hands to play with various toys, is beginning to clap her hands, rolls and belly crawls to get toys she wants, gestures “up”, and babbles “baba”.  Feeding issues have been resolved (love those baby rolls!), and she is eating some table foods.  This quiet little baby, previously so “unconnected”, now “soaks it all in”, focuses on people, and demands their attention.baby

When asked about Easter Seals’ ECI, Amanda responded:  “I’ve learned so much from ECI.  I’ve learned tons!  With my other children, I didn’t pay attention to how they moved; they just did it.  ECI helped me realize how important the best ways to move are for her.  That’s why she’s come so far and doing what she is today.”baby3

As she described Madalynn, Amanda stated:  “She’s gives you the biggest smile ever, just talking to her.  She just brings so much joy to others.  Everywhere we go, people stop to talk to her.  Just gives everyone joy.”  Her mom also shared the exciting news:  Madalynn’s picture will be featured in the 2018 Down Syndrome Calendar.

Amanda, Early Childhood Intervention Client Parent, Easter Seals Greater Houston

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Angels on Earth

The following letter was written by a parent of an Early Childhood Intervention Program client. Easter Seals Greater Houston’s ECI Program helps children ages birth to 36 months with disabilities and developmental delays achieve their goals in cognitive, social/emotional, communicative, adaptive and physical development.

Good morning,

My name is Camille and my son Justus was a client of the ECI program of Easter Seals Greater Houston.

The team of Ms. Phyllis, Ms. Frances, Ms. Nicole,Justus ECI Blog Photo Ms. Atra, Mr. Jesus, Ms. Jennifer, Ms. Christy, Mr. Ben. Ms. Thien and Ms. Chelsea went above and beyond. The impact that their professionalism and care of my son while he was in the program cannot adequately be expressed in words. Justus’ ability to walk, to speak, to feed himself, to comprehend simple commands, even to socialize with others is a direct reflection of the efforts of the team assigned to him and I could not have been more blessed to have interacted with them – a blessing truly.

Justus is now going through the process of getting screened by Lamar  Consolidated ISD. The persons conducting the evaluation are very pleased by what he demonstrates and they attribute his increased abilities to the great care provided by the Easter Seals Greater Houston Early Childhood Intervention team in which he was under.

Please pass this thank you on to them and let them know how much they mean to the clients they serve. I do not have any resources to adequately thank them for all that they did for Justus and myself. If there is an award or a recognition, please put each of them in for it – they all truly deserve it for they are God’s angels serving on earth today.

Thank you and have a great day!

Camille, Early Childhood Intervention Program client parent, Easter Seals Greater Houston

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Make Our Veterans Program Part of Your Unit

Usually I write about a person who was helped by the services I provide through Easter Seals Greater Houston’s Veterans Program. This time I’m going to do that with a twist, so let me tell you the story. Years ago I met a Marine and after this initial meeting our paths diverged for a long time. About a year ago, our paths crossed again at a Marine Corps birthday celebration in Houston and I learned he was a County Veterans Service Officer. After catching up we discovered that we both worked in the Veteran community to reduce the stigma around mental health, providing services to Veterans and their family members. Though our services are different, they both aim to end the suffering in silence of so many Veterans. Over this year, we have discussed all these things and one thing was clear-we have the same mission. A partnership was born that extends to the many Veterans we meet each week.

You might think this is just a story about two people in the community working together to help Veterans, but it isn’t. Yes, we benefit from the collaboration because of the confidence and trust that is shared between us. I know he will work hard and go the extra mile to help those I refer to him. He knows this of me too. Yet, the most important part of our meeting is how our complimentary services have benefited those that have served and their families. He most often refers individuals who have suffered in silence for years due to experiences from their service. Most often it is combat related. veteran-blogHe tells them how things can get better and how they can feel better. He offers hope from someone who has been there. He helps connect them to the services they need. And they get better. When they come to our Veterans Program I give them information about what they are dealing with, the sense of isolation reduces, they feel the support, more things seem possible, and more gets done. I tell them, “You didn’t get here by yourself, so build a unit that will help you get out of this.” Easter Seals Greater Houston’s Veterans Program can be part of that unit. A County Veterans Service Officer is part of my unit. And we press forward . . . offering hope and services to those who want them and who no longer want to suffer alone.

Dr. Cristy Gamez-Galka, Mental Health Lead for Fort Bend Veterans Case Management Program, Easter Seals Greater Houston

Easter Seals Greater Houston is proud to offer a variety of services that Veterans and their families can benefit from including Fort Bend Veterans Case Management Program, Fort Bend Veterans Companion Dog Program, Bank On Montgomery County as well as the collaborative efforts of the Texas Veterans + Family Alliance.

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Children’s Therapy Program There for Every Step

The following post was written by a clients mother:

ctp-blog-picMy daughter is 5 years old and diagnosed with a rare disease that causes vision impairment, epilepsy, low muscle tone and developmental delays. Her name is Aubrey and she is diagnosed with a mutation of the DNM1 gene. Her condition was undiagnosed for the first three years of her life. We initially received state sponsored physical, occupational and speech therapy. We also sought private therapy through a local hospital. Aubrey made extremely slow but steady progress. She could not sit unassisted or maintain weight on her legs. I spent time researching therapy and staying connected with families that have children with similar conditions. I was told about TheraSuit therapy by a family in Australia. Their children benefited from this intensive therapy. I then asked Aubrey’s health providers about the specialized physical therapy. I was put in contact with a local family that had a great experience with Easter Seals Greater Houston.

I contactctp-blog-pic-2ed Easter Seals Greater Houston and the staff member was extremely helpful in determining that Aubrey was eligible for services. I applied for financial help from a local charity organization and Aubrey was gifted a six week session of intensive physical therapy with Easter Seals Greater Houston‘s Children’s Therapy Program. Her progress was amazing. After the intensive therapy sessions ended we continued her treatment at Easter Seals. She is currently enrolled in Physical, Occupational and speech/feeding therapies with NDT certified therapists. She has made phenomenal progress. Easter Seals therapists have assisted us in finding equipment and adaptive toys through their ToyTech resource to help her. We are excited to see what the future holds for Aubrey and thank the special people that work with her weekly at Easter Seals Greater Houston.

Angela, Children’s Therapy Program parent, Easter Seals Greater Houston

“We must be willing to let go of the life we have planned, so as to have the life that is waiting for us.” – E.M. Forster

To refer a child or for further information regarding the Children’s Therapy Program please call 713-838-9050 ext 381

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