Tag Archives: PT

A Village of Heroes

The following is a letter written from a parent of an Early Childhood Intervention client to the director of the Easter Seals Greater Houston program.

“Good afternoon Ms. Dena Day, 

Hope all is well. It’s been a while since I last emailed you about the phenomenal work this agency has continued to bring to our family. The Early Childhood Intervention Program (ECI) under Easter Seals Greater Houston has so many diamonds that need to be highlighted over and over. Roshanda, Melissa, Thein, Michelle, and Marlene have been consistent with their work which showed our family how dedicated they are to their families. Individually and as a team, we witness their extraordinary work ethic every day that Za’karri receives services. This group of therapists and a nutritionist has stood by the Easter Seals‘ mission which is to “provide exceptional services to ensure that all people with disabilities and their families have equal opportunities to live, learn, work and play in their communities” Thank you Easter Seals Greater Houston for lending our family these delightful caring professionals to represent your agency and to help Za’karri thrive for success. Many of the therapists and the nutritionist have been incorporated into our family life since Za’karri was 5-month-old. 

Za’karri will be turning 3 years old this month. Writing this letter has made me very emotional. Sadly, our family’s time with ECI is coming to a close. We as humans face many changes in life and they are not always bad, this end will help us embark with all of the tools the therapists provided to us throughout the years. Za’karri has been seeing 3 therapists every 2 to 3 weeks and 1 Nutritionist monthly since 2019. Countless sessions over the years. Seeing these professionals for so long must be called “Za’karri’s Village of Heroes” The knowledge we obtained will allow us to support our little one in his new journey without his village. We as a family will make sure we continue to help him strive for greatness. We will not allow his underlying challenges to control his way of living or his enjoyment of the years to come. 

Our family is so grateful to be able to have each of these therapists/nutritionists be a part of his journey. This unique individual is so blessed to have so many people cheer him on, words can’t even express it. It’s because of you all that Za’karri has SOARED for greatness. His family is able to provide continuous support by incorporating the knowledge and tools the ECI team provided in weekly sessions. 

Za’karri’s village of a team highlighted impact and moments: 

When Melissa first met Za’karri at 5 months he couldn’t hold his head straight due to torticollis. Za’karri couldn’t roll over, crawl, or walk. Melissa identified that Za’karri had some developmental delays that were shown on his initial assessment. Our family is so grateful for the ECI assessment tool which identified Za’karri’s developmental delays early on. Without this agency, I wouldn’t know what to look for in any development delays, head tilt, or sensory processing disorder. 

Melissa has been providing therapy to Za’karri the longest and has been a great observer and excellent Physical Therapist. Melissa suggested many things that she felt would help Za’karri such as sensory activities, compression clothes, a compression vest for tiptoeing, and Wilbarger Brushing for sensory which is helping with my son’s progress. She also suggested that Za’karri would benefit from Speech and Occupational Therapy. Physical therapy with Melissa has allowed Za’karri to climb up steps, jump, run, and he can now do a sideways front forward roll. With the physical therapist’s assistance, he can now do all this and more. 

Melissa, Physical Therapist assisting and supporting Za’karri during his climbing exercise

We are trying to help him with W-sitting which is a challenge but we are still working to address it. Melissa has sent a referral to see Orthotics to observe his lower extremity orthoses to address the excessive pronation bilaterally. 

Thein is an awesome Nutritionist and is one of a kind. If you want someone to make sure your child has the right nutrients and to stay on track with a healthy diet and weight gain then Thein is your person. We had many challenges working with Za’karri trying many foods and touching items due to his SPD. We were able to work through some things such as making sure we put small portions of food on his plate. 

We have started incorporating Za’karri to assist with meal prep which he loves. Za’karri is still a work in progress in this area. He is still drinking PediaSure to maintain weight and to get the protein nutrients his little body needs. He is still not eating a variety of vegetables or fruits, but we are still exposing him to these items. Having SPD is very challenging when it comes to the low motor tones in his mouth which are very sensitive to touch. We have come a long way and getting to a point to at least kiss some of the fruit to at least get him to taste a little rather than no interaction. Za’karri loves to incorporate activities into his sessions. 

Michelle came along later but just in time to help this little one to overcome his challenges. When Michelle started working with Za’karri on his speech he was 1.5 years old. Za’karri was using non-verbal cues to communicate in sessions with Michelle. He was almost 2 years old and saying very few words and echoing and repeating the same word over and over. Over the months Michelle suggested incorporating sensory bins to help with his progression in speech. Michelle stated that to be successful in his speech we need to address his sensory needs. Michelle has been an asset ever since Za’karri had his tongue tie clip which help Za’karri progress more in speech. Michelle incorporates a z- vibe to help with tongue movement to speak. I’m proud to say that when Za’karri turned two he was incorporating three-word sentences and not echoing word for word. Za’karri is doing great in saying the alphabet as well as numbers from 1 to 20. 

Michelle, Speech Therapist, incorporating a food play activity along with speech interaction 

Marlene is the Occupational Therapist that has been working with Za’karri for the last couple of months. Marlene has been a delight to work with in addressing Za’karri’s sensory needs. Marlene has included food play activities with fun animal activities that he enjoys. This area of expertise has been a challenge for Za’karri he had a couple of therapists in OT. This one was different we had only Zoom visits which at the time was the only available option. I agreed with this option I felt he could still benefit from this service. Za’karri still have issues with wet textures, variety of foods he still doesn’t eat, along with sensory seeking behaviors in different environments. We still have concerns but will continue to focus more attention to address them in the future. 

Za’karri Favorite food play activity with Zoom call with Marlene, Occupational Therapist. 

Roshanda is a vital part of this team as the case manager. By providing supervision, guidance and leadership Roshanda allows this village to soar high for my family and others. Roshanda provided support when I was not satisfied with a certain situation it was resolved quickly and with integrity so Za’karri could still receive his services without any interruption. Roshanda has also stepped in supporting and functioning as a case manager and providing assistance with available resources and helpful information. 

While working with this village of heroes, I have learned how all the milestones overlap/connect and how all the therapist roles are very important and different but are all needed. Learning from a team of professionals allowed our family to be able to help Za’karri to the fullest. 

Their knowledge of food selection, hands-on activities techniques, and being flexible with my work schedule does not go unnoticed. They all love their work, care about the children they serve and are very compassionate to parents’ concerns and feelings. When times were overwhelming for me and my family the ladies provided a listening ear while staying professional and never crossing boundaries. It felt good as a parent to have this village of professionals who have always been kind and respectful. Having these types of diamonds around will surely have a successful impact on your organization for years to come. 

Za’karri experienced some regression but with the help of all the team working together and keeping each other in the loop, Za’karri has improved and accomplished many of his goals. Without these ladies and the Early Childhood Intervention Program, I’m not sure where my son would be today. The ladies have provided me and my family with the knowledge of how all the components connect on helping Za’karri succeed through any challenging times he may face. They have helped our family to communicate with our daycare provider so they can incorporate some of the work we are doing with Za’karri. 

Dena, the last six months have been a journey of success. I just wanted to let you know how awesome your Early Childhood Intervention team has been to Za’karri. 

Thank you, I know behind a good team there is always an amazing leader. A team cannot function without the guidance and support that you have been providing for your staff. On behalf of me and my family, thank you. 

With the help of the village of heroes’ tools and support, Za’karri will learn to function with his sensory processing disorder and will continue to adapt to his environment for many years to come. 

Thank you, 

Za’karri and family” 

Are you concerned about your baby’s development? Easter Seals Greater Houston’s Early Childhood Intervention services are available for children birth to 36 months who show a developmental delay, who are at risk for a delay, have a disability or atypical behaviors. Learn more.

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This summer, take the kids outside!

A few weeks ago, I was at a birthday party with my children.  During the party for kids 5-10 years old, a game of dodge ball was played.  As I watched the children play, I realized so many of these children were not able to throw and catch an average size ball.  When the ball was thrown, it was not near the target, and when the kids tried to catch it, most of the time they missed or were hit in the face.  As I observed this more, I realized these kids didn’t know how to move side to side, fell more than normally, and generally didn’t move well.  One parent told me her 10-year-old couldn’t ride a bike yet. 65212381_2522791257740396_8982192731078000640_n

Talking to the parents at the party, all of the parents were surprised that their typical developing children couldn’t do basic motor skills. Only 2 kids out of 35 could climb a rope, pull up on a gymnastics bar, and walk a balance beam.  And every single parent said “I need to take my child outside more.  We are putting up the screen.”

Now, I am not against screen time…within reason and of course, always for kids who use as communications devices. But, our kids need to move more.  Children – disabled or not – need to be playing outside, climbing trees, throwing balls, kicking balls, and playing with their friends.  This is how they develop strength and coordination.  Rolling down hills, climbing playground equipment, jumping, running, falling and getting back up, swimming, and riding bikes all develop core muscle control which is essential to coordination.  There have been many studies done on core control, coordination, and how children perform in school as well, and improving symptoms of ADHD.

So, this summer, take the kids outside. Ride a bike (wear a helmet), play catch, swim, climb a tree!  And the next time your child plays dodge ball, they might just be on the winning team!

 

Missy Dafler, PT, DPT, C/NDT, CKTP,

Physical Therapist

Easter Seals Children’s Therapy Program

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A Family’s Journey

Holding on tightly to their faith, Adrianna’s parentsIMG_4592 describe their life with her as a journey.  Adrianna, known as Adri, was born with Down Syndrome. Receiving the diagnosis of Down Syndrome for their youngest daughter was, at first, a shock and hard to process.  They were given encouragement from the doctors at the hospital after she was born, as well as pamphlets and other helpful information to read.  The hospital referred Adri to Easter Seals Greater Houston’s Early Childhood Intervention, discharged her from the hospital, and their journey began.

IMG_4594Not far into their journey, Adri’s “bad gag reflex” created the parents’ first real scare.  She was just 3 months old.  After feeding her, mom put Adri in her swing, the Early Childhood Intervention (ECI) evaluation team arrived, and Adri began gagging.  As mom reported, “I thought she was going to die!”  Due to the gag reflex, mom and dad learned Adri needed to be perfectly still at least 30-45 minutes after she ate, which affected what they were able to do as a family.  They couldn’t drive anywhere with her after feedings.  This lasted a few more months, then the formula was changed, she became bigger, and she outgrew that reflex.  Their second scare came not long after the first scare.  At 4:00 one morning, Adri’s G-button popped out and Adri was taken to the ER.  She came home from the hospital with a foley, and then it migrated into her intestines.  She went back to the ER, taken to surgery, and the foley was replaced with a G-tube…then it popped out, and she went back again to surgery.  As dad stated, “We’re pros now and can replace that button as long as we catch it early.”

Though their journey has had many ups and downs,IMG_4595 Adri has continued to blossom, and progress in all areas of development.  Described as very friendly, Adri has a smile for everyone she meets, waves, and says “hi”.  When she wants something, Adri communicates using gestures, signs and some single words.  Her love for the outdoors prompts her to go to the door, knock, and point.  Adri thrives on social attention.  She gives amazing hugs and takes hold of people’s hands as she sings her favorite songs with them.  Mom and dad report she sings along at church, too, and enjoys the other children there.  Adri receives some food through her G-button, but now eats a variety of foods.  She’s exploring more textures of foods, and feeds herself her favorite Cheetos puff snack.  To move around her home and explore outside, Adri walks behind a push toy.  During her time with ECI of Easter Seals, Adri has been receiving Occupational Therapy, Physical Therapy, Speech Therapy, SST, and case management.  The team works closely with her parents as they’re now working on more independence in walking, feeding, and using more words.

When asked about their experience with ECI of Easter Seals Greater Houston, both parents commented:

IMG_4596“We didn’t have a clue; how will we manage this?  With prayer, encouragement from friends, and help from ECI, she’s made so much progress!  ECI has been a great help and we’ve gained a lot of experience from them.  This has been a long road, but it’s helped her get where she is now.   She’s now independent, gotten stronger.  We’re looking forward to the next steps.” 

Easter Seals Greater Houston’s ECI Program helps children ages birth to 36 months with disabilities and developmental delays achieve their goals in cognitive, social/emotional, communicative, adaptive and physical development. Learn more here.

Sharon Mott, EIS/Transition and Outreach Coordinator, Easter Seals Greater Houston

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