Tag Archives: respite

Days Of Caring

On Friday September 28th, ExxonMobil and Easter Seals Greater Houston Adult Services Program went on field trip to the Houston Zoo together as part of the United Way Greater Houston Day of Caring. We really couldn’t have asked for a better day as the weather was perfect, the animals were active and the friendships were forming. About twenty-five ExxonMobil employees volunteered as buddies to walk through the zoo with adults with disabilities from the Adult Services Program. Split up into groups of 5 participants with 5 ExxonMobil volunteers, they were off to explore. Following the one-mile trail, noted on the zoo map, the groups stopped to see all the animals that the Houston Zoo has to offer. Many of our adults said while they loved watching the elephants play and dunk each other in the water during bath time, they were also excited about meeting new people.  We were so delighted that ExxonMobil asked to attend the zoo outing with us. This outing would not have been successful without their planning and organizing help, as well as their hands-on participation.

The main focus of the program is to provide adults with disabilities with a safe environment to socialize, participate in activities and explore life-long personal growth. Community outings with organizations like ExxonMobil are important contributors to improving quality of life, social skills, fitness and so much more for our clients. If your organization is interested in planning an outing with our program, please contact Ashley Nichols at anichols@eastersealshouston.org. And like XOM – if you have matching funds for your staff volunteers hours it is 2 times the support! And 2 times the fun!

Thanks again ExxonMobil and United Way!

Ashley Nichols, Easter Seals Greater Houston, Adult Services

 

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What the Snap?

Ethan, one of our Easter Seals Houston 2018 Summer Camp Interns, has been Denium’s counselor for the past two years. Before that, they had been in the same cabin. Over the three years, they built an amazing bond that helped both of them grow in a way that will forever be remembered. Sadly, camp does not last forever. At Camp Smiles, campers graduate when they are 14 years old. The graduation ceremony is always a very emotional time, as counselors who have been with their campers for years, give a speech to say farewell to some of the most impactful people in their lives. There is rarely a dry eye in the audience. Here is the speech Ethan gave to Denium as he was graduating:

You have been a part of my life I will never forget. From the countless catch phrases such as “ooooooh you got a girlfrieeeend” to nicknaming Pablo as Pappadeux, your humor is a gift that will be remembered by all.

This is our second year together. Imagining a camp experience without you is just strange to me. While your presence overall is unforgettable, there are some specific instances that are especially amazing. Two years ago, we had a very emotional day together. We were outside of the art barn, and I decided to sneak up on you and pop a wheelie as a joke. Little did I know, you were already in an irritable mood because of something that had just happened. As soon as I did that, you reached back and swatted at me. My popping a wheelie with you was the tip of your iceberg. You were very upset. We got back to the cabin and the other counselors and I insist that you apologize. After a while, our friend, Lee, took you to the bathroom so y’all could have a talk about it and calm down. What happened next is something that will never fail to make my heart melt. I remember you coming in, looking very sad. You came up to me and said something very softly, too softly to hear. I ask what you said. You took a moment to collect yourself. Then, you pulled me in as tight as you could and profusely apologized to me and told me how sad you were. Never in my life have I experienced such raw sincerity. While you were crying and apologizing, I began to cry as well as I realized how sincere and caring of a person you truly are.

After a couple of years with you, I’ve noticed some changes in your personality. For one, during your first year, you were completely repulsed by the idea of interacting with the icky icky girls. Now this year, you can’t stay away from them. You went from poking fun at Lee for having a girlfriend by saying “oooooh, you got a girlfriend” every time Sophie walked by. Now, you proudly announce to your whole cabin that you indeed do “have a girlfriend”.

On a more serious note, the change that I have been most proud to witness is how much more open you’ve been with your caring personality. Spending time with you has given me the unique opportunity to experience not only the hilariously wild side of you that I call “what the snap Denium” but also the sweet and tender side of you. The side of you that holds Jacoby with care. The side that is well beyond content while tickling and smiling at Niko. It has been very impactful on me and has made me so happy. I’m so proud that I got to see you interact with the little ones so well.  The way you interact with the little ones has made everyone who has been around you smile. The way you interact with Niko and Jacoby shows a new side of you that makes me so so proud. You are truly beyond your years with the way you patiently interact with these kids.

Camp has been a huge part of my life. I tell everyone I meet that there is nothing more I look forward to than this particular week. Every time I envision future camp experiences, I still picture you being a part of them. You’re an important part of this community we have and will be missed dearly.

I know that as you move on in life, you will continue to make others happy. Whether it be through your humor, or your humongous caring heart, you will make the lives of so many people much brighter. I hope that we keep in touch so that when I have kids one day, you can make them smile.

Ethan, Summer Camp Intern, Easter Seals Greater Houston

 

 

 

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Caring for the Caregiver

The following was written by the parents of one of our beloved clients that have participated in Easter Seals Greater Houston’s Family Day Out and Respite Voucher programs for many years.

Family Day Out is a center-based Respite service 20171007_102818that provides respite care on Saturdays to families of children ages 6-14 with all types of disabilities. Our son, Brandon, and the other children benefit from arts and crafts, games, and playground activities and receive one-on-one assistance from volunteers. As parents we benefit greatly with much needed time to get caught up on anything we may need to get done (paperwork, house work …the list goes on) or even have a much needed day date! (Dates are far and in between!) Family Day Out also gives us much needed one-on-one time with our daughter. Children that have siblings with disabilities often don’t get as much attention due to the high demand kids with disabilities require. It’s a great opportunity to spend quality time with siblings.

What we love most about Family Day Out is that our son is able to spend time with volunteers, staff, and friends that over the years have gotten to know and love him.  Each session is also staffed by a nurse and a center director. It’s somewhere he feels 100% accepted and has tons of fun.

20161203_114712We are so grateful to have been able to look forward to at least one Saturday several months a year that Brandon will be well taken care of while having fun so we can have time to ourselves, guilt-free. This September will be a sad one since the Family Day Out program is only able to accommodate kids through 14 years old at this time and Brandon turns 15 at the end of September.

We also participate in Easter Seals’ Respite Voucher Program which allows us to select our own childcare provider for in-home care. These hours allow us to run errands and take a much-needed break while Brandon is with someone we know and trust to care for him. As Brandon has gotten older the respite hours to use at our leisure have become as much of a blessing as Family Day Out. Qualified sitters (those who can handle meltdowns, behavior issues, etc.) for children with disabilities have a much higher rate than typical sitters so the respite hour vouchers help tremendously when funds are already tight.

Easter Seals Greater Houston’s 20171007_130244

Family Day Out program and Respite Voucher program are truly blessings to ours and so many other families!

Thank you,

Jeff and Tiffany, Respite client parents, Easter Seals Greater Houston

Learn more about Easter Seals’ Care Giving Services.

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Relax, Recharge, Feel Refreshed

Thanks to Easter Seals Greater Houston and Hilton Hotel of America, Downtown Houston – my husband and I enjoyed the gift of time together and a break from home, where we could recharge ourselves. Living in a disabled family, although rewarding, is full of extreme ups and downs that can be excessively stressful at times. Around the clock duty as a care taker to our adult son with autism and co-occurring disabilities means that time away is a chance to unwind, have some much needed down time and also return ready to take on another day. We really appreciated that Easter Seals Greater Houston Respite Program gives us the chance to get away from home, but be close enough in case of emergencies. We enjoyed our trip to The Houston Galleria to prepare for the holidays and were spoiled with deliciously prepared breakfasts.

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Easter Seals Greater Houston has been a constant support in our lives for our son. Not only with the Respite Program, but when he was younger and attended Family Day Out on Saturdays once a month and of course the much anticipated Camp Buckaroo in the summer. Before the location in The Woodlands started, we would drive over an hour each way into Houston for camp, it was worth the chance to have our son engaged and stimulated in a safe environment for a few days during the summer break.

Thank you for the opportunity to enjoy this time especially during the hectic holiday season. We were so happy and care free for a couple of days – and this opportunity could not have come at a more needed time.

We appreciate Easter Seals Greater Houston, love the Hilton of Americas and are thankful for all you do for the disabled community and care takers.

Thank you,

Nicole and Darrel, Respite Services clients, Easter Seals Greater Houston

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Miraculous Megan: Longtime Client and Friend

Megan Fry is an amazing 17 year old girl. She has been part of the Easter Seals Greater Houston family for over 10 years. She has the mind and the personality of a typical developing teenage girl. She loves art and has her own website, Just My Eye, that meg-w-dvox-300x225showcases her creations. One of Megan’s many unique qualities is that she was born with cerebral palsy, with an end result of being nonverbal and using a wheelchair to maneuver around. You need to be careful because she drives her chair around very fast! She communicates and shows off her big personality by using a Tobii. The Tobii is a device that allows Megan to use her eyes to pick out her words which are then shared through the speaker.

Over the years, Megan has attended our summer camps, participated in Family Day Out, received In-Home Respite, and participated in our BridgingApps program. Her family has participated in our Lil’ Rustler Rodeo night with the Houston Livestocgroupk Show and Rodeo, used a Respitality weekend, participated in our Walk With Me at the Houston Zoo event and our Hats Off to Mother’s Luncheon. We were fortunate to have Megan as our summer intern this past year. She created and distributed our Easter Seals Montgomery County newsletter. Megan is currently participating in our Family Day Out program as a Junior Director. She is amazing with our clients and our families.

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Megan is a true success story and ambassador for Easter Seals Greater Houston. Megan and her mom even went on speaking engagements last year to represent Easter Seals during the United Way campaign. She has received services and continues to give back to our community. We can’t wait to see what the future holds for Megan because we know there is nothing she can’t accomplish!

Kristie Carlisle, Respite Program, Easter Seals Greater Houston

Check out Megan’s dad’s post about how assistive technology helped him connect with his daughter here!

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PNO = R&R

My husband, Doug, and I welcomed our wonderful son, Duncan, after our 39th birthdays. Having met at 21, we’d spent the better part of two decades dining at the best “cheap eats” in Houston, taking weekend jaunts in Texas, exercising daily, and enjoying the occasional happy hour. Quite simply, we appreciated the benefits of living as DINKS (double-income, no kids).

Dec 2015 Respite blog PNO 1So along came our beautiful baby. Overnight, our lives transformed in rewarding and challenging ways I never could have imagined. Of course, this is true for any new parent, but there exists an additional anxiety, concern and effort when you care for a child with special needs. Doctors’ appointments, therapy, testing, tutoring, special-ed meetings, financial challenges, and countless hours of online research: It’s just plain exhausting.

So, when we heard about the Easter Seals Greater Houston Respite Program, Parents’ Night Out, we were cautiously optimistic.  We were happily surprised at its affordability: $10 for four hours of babysitting by Easter Seals’ skilled volunteers and staff.  But, we know our son. He is fearful of new situations, despite having attended summer camps with Easter Seals Greater Houston. Bless his heart, he is visually impaired, has epilepsy and CP, so who could blame him?Dec 2015 Respite blog PNO 2

Our concerns were unfounded and he made fast friends at Parents’ Night Out. The volunteers exemplify patience and understanding, each offering a weekend night to care for our son, later telling us how much they enjoy Duncan!  Six months later, he asks to attend the “babysitting place” nearly every Friday night.  Doug and I have actually seen three movies and been out to dinner twice during the last six weeks! That reconnection is critical with the added stress of our days.

From respite for caregivers to summer camps and fun activities for children, Easter Seals is a blessing for thousands of people in the Greater Houston area. And the Graham family is proof of that.

-Catherine Graham, Respite Program client parent

For more about Easter Seals‘ Care Giving Services, click here.
For more about Easter Seals’ Camps and Recreation, click here.

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A Dear Friend of Easter Seals

tupperA Tribute to Lynne Tupper: A long standing, tried and true volunteer for our Respite Program’s Parents Night Out. Lynn will be greatly missed by our clients, staff, and the Houston community.

“I can’t believe she is gone. Lynne was my wonderful friend and also a friend to Easter Seals Greater Houston Respite Program. Even though it was hard for her to tear herself away from her job she loved so much, she always joined us for our annual Christmas Party. As a social worker for 40 years, I have encountered many healers whose hearts were big and who made a difference. But Lynne stood out at the top. She helped me see what really mattered, to examine our values and our hearts. No one can take her place. No one. My life was touched by her in a way that will be with me forever.”

Linda Latimer, Respite Program Director, Easter Seals Greater Houston

lynneLynne served as a devoted Clinical Director at the Occupational Therapy Center in Houston, TX for over 30 years. Lynne will be greatly missed; however, she will never be forgotten.

 

A memorial service for Lynne C. Tupper will be held on Tuesday, December 8th, 2015 at 2:00pm at St. Phillip United Methodist Church – 5501 Beechnut St. (At Renwick) Houston, TX 77096.

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