Tag Archives: respite

Letter from the Heart

To our friends at Easter Seals Greater Houston, I would like to thank you for the support you have given to our family as well as to many other families like ours. Your great contribution to many families like ours is extremely helpful, we are very grateful for the support that the Easter Seals Respite Program has given and this makes our life and work easier with our children and other families in special need. Respite Blog Careigiver for November spanish translation

Your work is not simply an office job but a way to be good human beings and in the same way, it will be rewarded with the best payment that they could accrue which is the blessing of God. You are the ones who who give hope to every person who labors with disability and makes things possible and others to relax, breathe and sit down with the support they need.

Hoping that these few but grateful words will come to your hearts, I am very grateful to them, that God will continue to bless them.

-Valentin, Easter Seals Respite Client

Respite Services provides relief options to parents who provide ongoing care of their family member who has a disability. Many parents of children and adults with disabilities have low incomes and cannot afford to hire providers to take time away from their children. Many people with disabilities require 24-hour, around-the-clock supervision, attention and care. This continuous demand becomes a tremendous drain on caregivers emotionally, physically and mentally-this care will remain constant as they grow older. Consequently, families of children with disabilities are at high risk for divorce, substance abuse and child abuse because of the continuing stress of caring for the child with disabilities. Respite care is an assistance program to parents, but just as importantly, is a prevention program aimed at stopping some of the social problems that can result from the tremendous demands made on families due to the disabilities of their child or the institutionalization of the family member with a disability. For more information click here. This important program is largely possible because of the generosity of our community, please consider donating today.

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Caregiving for the Caregiver

The following was written by a parent who receives Respite Services from Easter Seals Greater Houston.

I am an immigrant, single mother of a son who has autism and speech delay. I have a full-time job supporting my son and I. Things are difficult with no family in town and just a couple of friends. We essentially have little to no caregiver support here. Thanks to Easter Seals Greater Houston’s Respite Program I now have help. We are now connected with their Respite Program that provides the break and support that I was looked for and needed.

I have now opportunity once a week to not only take care of myself but also go out to social gatherings, spend time with friends and will be starting a dance class now too!  I am lucky to say that thanks to Easter Seals Greater Houston and their caregiver support, my life and family finally feels balanced.

Respite Parent, Easter Seals Greater Houston Respite Services

Many parents of children and adults with disabilities have low incomes and cannot afford to hire providers to take time away from their children. Many people with disabilities require 24-hour supervision, attention and care. This continuous demand becomes a tremendous drain on caregivers emotionally, physically and mentally-this care will remain constant as they grow older. Providing this much needed support for caregivers is only possible because of the generosity of the community. Would you please consider helping support the thousands of families that depend on Respite Services and donate today?

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It Takes A Village of Great Therapists

Our family is a little sad, but completely proud to have our son graduate from Easter Seals Greater Houston’s Early Childhood Intervention Program. We are so very grateful to have had the wonderful team that Easter Seals Greater Houston’s Early Childhood Intervention Program provided.  After our son John’s long NICU stay he began receiving outstanding therapy from Easter Seals ECI team. First of all I’d like to thank Aliza. At any time I could call you with any issue or concern. You never failed to provide me with resolutions for my concerns. You had John’s best interest at heart. Thank you!

Lisa Rand. I could always talk to her about sensory issues with John. You sent me texts on your free time with videos that really did work for John. It was such a joy to have you in our home. We always looked forward to all the goodies you had in your bag. With your therapy sessions John can take on anything! Thank you!

Jennifer Miller. We worked with you for a little while, but we were more than ecstatic to have you teach John to say those hard to speak letters (like B and P).  You are a wonderful therapist, mom and friend! John says more sentences because of you! Thank you! 

Neice Thomas. You were such a gentle therapist. Your patience with John made me so thankful to you. He touches Play-Doh and slime without issue! Thank you!

Lastly, Andy Fry. It was always a nice getaway for John. To meet other children with similar issues. Your Family Day Out Program was so fun! What you do for the children and parents is great. Thank you!

We will continue to do the Walk With Me with Easter Seals Greater Houston once it is safe for us all to do so. We certainly do miss ECI!  Thank you again for all the work that was put in for John.

Sincerely,

Monique Stuart
John Stuart
Curtis Stuart

Easter Seals Greater Houston’s ECI Program is still providing all services via tele-therapy including evaluations. Call Alicia at 713.838.9050 ext. 385 to schedule a free evaluation and to check on your child’s milestones.

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Parent Night Out

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After years of holding Respite Services’ Parent Night Out event at Gethsemane United Methodist Church in Bellaire (and inheriting the beloved Houston Area Respite Center or HARC), Easter Seals Houston needed to make a change due to upcoming renovations at the facility.  We made the move this past Friday night to our very own Easter Seals Greater Houston location at 4888 Loop Central Drive.  The exact location is inside our beloved Caroline School.  We will be holding the PNO program on Friday evenings from 6:30 P.M. to 10:30 P.M. unless otherwise noted (weather/holidays etc.). PNO

Our first night in the new location – we had an amazing time with our clients, the volunteers and staff and we all agree that it was a great success!

Parents Night Out is intended to provide Respite services for our caregivers, those who love and care for our clients’ day in and day out. It gives parents and guardians a small break from their normal duties to relax and have some down time.  This is also a treat for our clients, who look forward to having fun, interacting with new friends and getting out of their daily routines.  We are planning theme nights and a variety of activities make PNO even more fun and engaging!

As the Respite Family Coordinator & the Parents Night out Program Coordinator, I am beyond excited to see what our future nights hold. At Easter Seals we understand the necessary support you need as a caregiver and if this is what we can offer then I can only strive to make it the best.

PNO.jpgIf you or anyone you know who is active, has a positive attitude, a big heart and would like to volunteer, please reach out to me at arico@eastersealshouston.org for more information on our program. Please reach out if you are interested in enrolling as well.

“The functions of intellect are insufficient without courage, love, friendship, compassion and empathy.” -Dean Koontz

Adriana Rico, Easter Seals Greater Houston, Respite Family Coordinator

*PNO is a Friday night out-of-home Respite program currently held in two locations around the Houston area.  Children, teens, and young adults with disabilities are welcome to come and have an out-of-home opportunity to socialize in a safe and fun environment.  Depending on age and activity level, one of the two locations can be recommended for appropriate care. Application and reservations must be submitted prior to attendance.

 

 

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I am in the Caring Business

Caregiving-the activity or profession of regularly looking after a child or a person who is sick, elderly or disabled. There can be the feeling of fulfillment and happiness, it can also be overwhelming on a caregiver and could be mentally and physically exhausting. Being a Respite Family Coordinator for Easter Seals Greater Houston, this is what I hear every day through tears, sighs, laughter, joy and distress. I can’t help but feel the families’ pain and do what I do with love. I share their pain, fear and hurt. I can’t deny that this position has made me a better person, more compassionate and understanding to what we take for granted each and every day. I can sit here and ramble on about what a caregiver goes through, but what I need is for people to understand is that we do what we do…because we CARE. Not just anyone can do that and for that, I am grateful that I wake up knowing I did something to make someone else’s day just a little bit better.

When people ask me what I do? Screenshot_2019-07-02-09-17-22~2.png

I start with I ABSOLUTELY love what I do.

I try to bring awareness and motivate people to go out of their way to help those in need. Overall my organization, ESGH is about caring, my Respite program is caring. If all I have to do is show them that they are appreciated each and every day by offering our services, then I will go above and beyond. It is not just a job, I do it with lots of love and pride. To all the caregivers out there, may your heart be filled with joy, warmth and happiness.

“It’s not how much you do, it’s how much love you put in the doing.” –Mother Teresa

 

Respite Services provides relief options to parents who provide ongoing care of their family member who has a disability. Many parents of children and adults with disabilities have low incomes and cannot afford to hire providers to take time away from their children. Many people with disabilities require 24-hour, around-the-clock supervision, attention and care. This continuous demand becomes a tremendous drain on caregivers emotionally, physically and mentally-this care will remain constant as they grow older. Consequently, families of children with disabilities are at high risk for divorce, substance abuse and child abuse because of the continuing stress of caring for the child with disabilities. Respite care is an assistance program to parents, but just as importantly, is a prevention program aimed at stopping some of the social problems that can result from the tremendous demands made on families due to the disabilities of their child or the institutionalization of the family member with a disability.

Adriana Rico, Respite Family Coordinator, Easter Seals Greater Houston

 

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Days Of Caring

On Friday September 28th, ExxonMobil and Easter Seals Greater Houston Adult Services Program went on field trip to the Houston Zoo together as part of the United Way Greater Houston Day of Caring. We really couldn’t have asked for a better day as the weather was perfect, the animals were active and the friendships were forming. About twenty-five ExxonMobil employees volunteered as buddies to walk through the zoo with adults with disabilities from the Adult Services Program. Split up into groups of 5 participants with 5 ExxonMobil volunteers, they were off to explore. Following the one-mile trail, noted on the zoo map, the groups stopped to see all the animals that the Houston Zoo has to offer. Many of our adults said while they loved watching the elephants play and dunk each other in the water during bath time, they were also excited about meeting new people.  We were so delighted that ExxonMobil asked to attend the zoo outing with us. This outing would not have been successful without their planning and organizing help, as well as their hands-on participation.

The main focus of the program is to provide adults with disabilities with a safe environment to socialize, participate in activities and explore life-long personal growth. Community outings with organizations like ExxonMobil are important contributors to improving quality of life, social skills, fitness and so much more for our clients. If your organization is interested in planning an outing with our program, please contact Ashley Nichols at anichols@eastersealshouston.org. And like XOM – if you have matching funds for your staff volunteers hours it is 2 times the support! And 2 times the fun!

Thanks again ExxonMobil and United Way!

Ashley Nichols, Easter Seals Greater Houston, Adult Services

 

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What the Snap?

Ethan, one of our Easter Seals Houston 2018 Summer Camp Interns, has been Denium’s counselor for the past two years. Before that, they had been in the same cabin. Over the three years, they built an amazing bond that helped both of them grow in a way that will forever be remembered. Sadly, camp does not last forever. At Camp Smiles, campers graduate when they are 14 years old. The graduation ceremony is always a very emotional time, as counselors who have been with their campers for years, give a speech to say farewell to some of the most impactful people in their lives. There is rarely a dry eye in the audience. Here is the speech Ethan gave to Denium as he was graduating:

You have been a part of my life I will never forget. From the countless catch phrases such as “ooooooh you got a girlfrieeeend” to nicknaming Pablo as Pappadeux, your humor is a gift that will be remembered by all.

This is our second year together. Imagining a camp experience without you is just strange to me. While your presence overall is unforgettable, there are some specific instances that are especially amazing. Two years ago, we had a very emotional day together. We were outside of the art barn, and I decided to sneak up on you and pop a wheelie as a joke. Little did I know, you were already in an irritable mood because of something that had just happened. As soon as I did that, you reached back and swatted at me. My popping a wheelie with you was the tip of your iceberg. You were very upset. We got back to the cabin and the other counselors and I insist that you apologize. After a while, our friend, Lee, took you to the bathroom so y’all could have a talk about it and calm down. What happened next is something that will never fail to make my heart melt. I remember you coming in, looking very sad. You came up to me and said something very softly, too softly to hear. I ask what you said. You took a moment to collect yourself. Then, you pulled me in as tight as you could and profusely apologized to me and told me how sad you were. Never in my life have I experienced such raw sincerity. While you were crying and apologizing, I began to cry as well as I realized how sincere and caring of a person you truly are.

After a couple of years with you, I’ve noticed some changes in your personality. For one, during your first year, you were completely repulsed by the idea of interacting with the icky icky girls. Now this year, you can’t stay away from them. You went from poking fun at Lee for having a girlfriend by saying “oooooh, you got a girlfriend” every time Sophie walked by. Now, you proudly announce to your whole cabin that you indeed do “have a girlfriend”.

On a more serious note, the change that I have been most proud to witness is how much more open you’ve been with your caring personality. Spending time with you has given me the unique opportunity to experience not only the hilariously wild side of you that I call “what the snap Denium” but also the sweet and tender side of you. The side of you that holds Jacoby with care. The side that is well beyond content while tickling and smiling at Niko. It has been very impactful on me and has made me so happy. I’m so proud that I got to see you interact with the little ones so well.  The way you interact with the little ones has made everyone who has been around you smile. The way you interact with Niko and Jacoby shows a new side of you that makes me so so proud. You are truly beyond your years with the way you patiently interact with these kids.

Camp has been a huge part of my life. I tell everyone I meet that there is nothing more I look forward to than this particular week. Every time I envision future camp experiences, I still picture you being a part of them. You’re an important part of this community we have and will be missed dearly.

I know that as you move on in life, you will continue to make others happy. Whether it be through your humor, or your humongous caring heart, you will make the lives of so many people much brighter. I hope that we keep in touch so that when I have kids one day, you can make them smile.

Ethan, Summer Camp Intern, Easter Seals Greater Houston

 

 

 

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Caring for the Caregiver

The following was written by the parents of one of our beloved clients that have participated in Easter Seals Greater Houston’s Family Day Out and Respite Voucher programs for many years.

Family Day Out is a center-based Respite service 20171007_102818that provides respite care on Saturdays to families of children ages 6-14 with all types of disabilities. Our son, Brandon, and the other children benefit from arts and crafts, games, and playground activities and receive one-on-one assistance from volunteers. As parents we benefit greatly with much needed time to get caught up on anything we may need to get done (paperwork, house work …the list goes on) or even have a much needed day date! (Dates are far and in between!) Family Day Out also gives us much needed one-on-one time with our daughter. Children that have siblings with disabilities often don’t get as much attention due to the high demand kids with disabilities require. It’s a great opportunity to spend quality time with siblings.

What we love most about Family Day Out is that our son is able to spend time with volunteers, staff, and friends that over the years have gotten to know and love him.  Each session is also staffed by a nurse and a center director. It’s somewhere he feels 100% accepted and has tons of fun.

20161203_114712We are so grateful to have been able to look forward to at least one Saturday several months a year that Brandon will be well taken care of while having fun so we can have time to ourselves, guilt-free. This September will be a sad one since the Family Day Out program is only able to accommodate kids through 14 years old at this time and Brandon turns 15 at the end of September.

We also participate in Easter Seals’ Respite Voucher Program which allows us to select our own childcare provider for in-home care. These hours allow us to run errands and take a much-needed break while Brandon is with someone we know and trust to care for him. As Brandon has gotten older the respite hours to use at our leisure have become as much of a blessing as Family Day Out. Qualified sitters (those who can handle meltdowns, behavior issues, etc.) for children with disabilities have a much higher rate than typical sitters so the respite hour vouchers help tremendously when funds are already tight.

Easter Seals Greater Houston’s 20171007_130244

Family Day Out program and Respite Voucher program are truly blessings to ours and so many other families!

Thank you,

Jeff and Tiffany, Respite client parents, Easter Seals Greater Houston

Learn more about Easter Seals’ Care Giving Services.

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Relax, Recharge, Feel Refreshed

Thanks to Easter Seals Greater Houston and Hilton Hotel of America, Downtown Houston – my husband and I enjoyed the gift of time together and a break from home, where we could recharge ourselves. Living in a disabled family, although rewarding, is full of extreme ups and downs that can be excessively stressful at times. Around the clock duty as a care taker to our adult son with autism and co-occurring disabilities means that time away is a chance to unwind, have some much needed down time and also return ready to take on another day. We really appreciated that Easter Seals Greater Houston Respite Program gives us the chance to get away from home, but be close enough in case of emergencies. We enjoyed our trip to The Houston Galleria to prepare for the holidays and were spoiled with deliciously prepared breakfasts.

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Easter Seals Greater Houston has been a constant support in our lives for our son. Not only with the Respite Program, but when he was younger and attended Family Day Out on Saturdays once a month and of course the much anticipated Camp Buckaroo in the summer. Before the location in The Woodlands started, we would drive over an hour each way into Houston for camp, it was worth the chance to have our son engaged and stimulated in a safe environment for a few days during the summer break.

Thank you for the opportunity to enjoy this time especially during the hectic holiday season. We were so happy and care free for a couple of days – and this opportunity could not have come at a more needed time.

We appreciate Easter Seals Greater Houston, love the Hilton of Americas and are thankful for all you do for the disabled community and care takers.

Thank you,

Nicole and Darrel, Respite Services clients, Easter Seals Greater Houston

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Miraculous Megan: Longtime Client and Friend

Megan Fry is an amazing 17 year old girl. She has been part of the Easter Seals Greater Houston family for over 10 years. She has the mind and the personality of a typical developing teenage girl. She loves art and has her own website, Just My Eye, that meg-w-dvox-300x225showcases her creations. One of Megan’s many unique qualities is that she was born with cerebral palsy, with an end result of being nonverbal and using a wheelchair to maneuver around. You need to be careful because she drives her chair around very fast! She communicates and shows off her big personality by using a Tobii. The Tobii is a device that allows Megan to use her eyes to pick out her words which are then shared through the speaker.

Over the years, Megan has attended our summer camps, participated in Family Day Out, received In-Home Respite, and participated in our BridgingApps program. Her family has participated in our Lil’ Rustler Rodeo night with the Houston Livestocgroupk Show and Rodeo, used a Respitality weekend, participated in our Walk With Me at the Houston Zoo event and our Hats Off to Mother’s Luncheon. We were fortunate to have Megan as our summer intern this past year. She created and distributed our Easter Seals Montgomery County newsletter. Megan is currently participating in our Family Day Out program as a Junior Director. She is amazing with our clients and our families.

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Megan is a true success story and ambassador for Easter Seals Greater Houston. Megan and her mom even went on speaking engagements last year to represent Easter Seals during the United Way campaign. She has received services and continues to give back to our community. We can’t wait to see what the future holds for Megan because we know there is nothing she can’t accomplish!

Kristie Carlisle, Respite Program, Easter Seals Greater Houston

Check out Megan’s dad’s post about how assistive technology helped him connect with his daughter here!

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