Escaping Boredom Together

Even though we are just itching to get to see each other again in person, we are making the most of our time on Zoom! Every week our LEAD Adult Program meets virtually via Zoom with a different activity planned for each meeting. Last week, Kenzie Richard volunteered her time to lead our adults through a Disney World Virtual Escape Room! Our LEADers participated in each challenge to escape Disney World. Some of the challenges were quite hard but when we worked as a team, we were able to get out in just under an hour. Thank you Kenzie for leading us through that fun adventure! Check out this video of our Adult Program participants working together to escape the room and boredom.

Do you have a special activity or program you think our LEAD Adult Program would enjoy? Are you interested in leading us through the activity for 30 minutes or an hour via Zoom? Email Ashley Nichols at ANichols@eastersealshouston.org to learn how you can get involved!

Learn more about Easter Seals Greater Houston’s LEAD (Life Enrichment for Adults with Disabilities) Adult Programs.

Internships Build Resumes and Priceless Friendships

Every year Easter Seals Greater Houston hires two interns to help run our amazing summer camps. This year we hired Lindsay and Maddie who are tasked with helping make sure our first ever virtual camps run smoothly. Read how the campers inspire these two hard working young women!

Hi everyone!

My name is Lindsay.  This summer marks my fifth summer being involved with Easter Seals Greater Houston and my second summer as a Camp Intern!  I began volunteering with Easter Seals summer of 2016, simply to get service hours.  Little did I know at the time how much Easter Seals would transform my life.  Interning last summer was hands down one of the best summers of my life.  I learned so much and made the most amazing connections with those around me.  In the fall, I’m headed to Texas A&M University to study Allied Health.  Easter Seals has provided me with an amazing career trajectory as I hope to be either a speech pathologist or physical therapist in the future.  Time will tell which one of these paths I choose to take!

While being stuck in quarantine, one of the things I have missed the most is camp.  Even though this summer is going to look different than most, I know it will be a great one! The thing I’m most excited about is reuniting with all the amazing campers I met last summer!  The friendships I have formed with so many campers are the reason why I keep coming back.  The children I have met at camp have shaped me into the person I am today, and I am forever thankful. One of my favorite stories is an interaction I had with a camper named Angel.  I met Angel at Camp Smiles last summer.  Throughout the week at camp, I got to know Angel and became friends with him.  At the end of the week, Angel told me camp was one of the best weeks of his life and that he was so excited to come back next year but only if I was there! It was such a small statement, but it meant so much.  I cannot wait for another summer full of little moments like this.

-Lindsay Veech

Hello Easter Seals readers!

My name is Maddie, I’m 19, and I’ve lived in Houston my whole life! I just finished my freshman year at Texas A&M University, where I’m studying Environmental Science. At Texas A&M, I’m involved in my sorority Kappa Alpha Theta and Aggie ACHIEVEMates. I first started volunteering with Easter Seals Greater Houston through my chapter of National Charity League. I’m very passionate about Easter Seals and serving those with disabilities. I’ve been to both Camp Smiles and Camp Buckaroo! One ofmy favorite camp memories is Karate Day with my buddy Christian at Camp Buckaroo, he is a pro at karate-chopping! I’m so excited to be a summer camps intern this year. I can’t wait to learn more about Easter Seals and hang out with the most awesome campers!

-Maddie Farrell

Learn more about our Camps and Recreation Programs and volunteering opportunities today!

MOST of All!

Teamwork makes the dream work!  Teens with cerebral palsy and volunteers (many of them long-time volunteers – thanks, friends!) had a great time last month at Easter Seals Camp MOST Weekend Camp – riding horses, doing archery, and challenging themselves at the tower – and learning about self-awareness, advocacy, and teamwork during the jam sessions. This past weekend the crew worked together to line up PVC pipe and get a marble from one end to the other.  Kudos to teen, Sebastian, for stepping up and leading the teens and getting everyone started on a plan.  The teens got the ball rolling and had a resounding success!

Kenzie Richard, Easter Seals Greater Houston, Program Coordinator

Coming Full Circle – Volunteer to Staff Member

Katherine von Haefen is a long-time United Way Greater Houston staff person.  She was at United Way when I was in high school, and she was in charge of the Kids Way Program then.  Kids Way was most definitely the thing that taught me to love volunteering in high school, and really instilled in me the idea of lifelong volunteerism.  Fast forward to today, and Katherine’s high school aged daughter, Alison, volunteered for Camp Buckaroo for the first time this summer.  Alison had a wonderful time and is now thinking about making working with people with disabilities her career, as many of our amazing teen volunteers do.  She’s already reached back out to Kenzie Richard, Easter Seals Camp Program Coordinator, to ask about volunteering during the school year!  It’s neat to think that Katherine was around when I discovered my love for volunteering, and now I’m around when her daughter’s making the same discovery – totally coming full circle.

Christine Ellery, Program Director Easter Seals Greater Houston.

*Easter Seals Greater Houston is proud to have been a partner of United Way GH since the days of it being called The Community Chest… a very long time! UWGH has enabled ESGH to serve so many more clients – thousands and thousands – through their and their donors support allowing us to ensure family stability, create growth, independence, and more.

Big Gifts and Little Gifts According to Our Will

My name is Will Ellery.  I am 8 years old and I go to Parker Elementary.  My mom works at Easter Seals.  Sometimes I get to go to camp with her.  When I do, if everyone has gone first and had all the turns they want at the activities, then sometimes I get to go too.  I’ve never been able to do the ropes course because I always get scared.  One time I put on the harness and that was all I could do.  Another time I climbed up the ladder to get on the giant swing, but then I just climbed back down the ladder.  One time I started climbing the rock wall, but then I came back down after halfway because I didn’t feel safe.

Before Thanksgiving I got to go to the Veterans and family camp.  I met my friend, Ms. La’Tori, there.  She was there by herself because her baby is sick.  She is in the NICU at the hospital.  I was in the NICU too when I was a baby so that’s something we have in common.  Ms. La’Tori said she was going up the rock wall by herself, but she was going to wait for everybody else.  I told her I wasn’t allowed to go until last, and only if there was enough time.  She asked me if I had climbed the rock wall before, and I told her my stories about getting scared.  She said, “Well, why don’t we try going together?”

So we stood and waited together.  Sometimes I would get butterflies in my stomach.  I asked Ms. La’Tori if she was sure we could go together.  She said yes.  I asked her if she would stay with me and not go too fast.  She said yes to that too.  Some of the big older boys were going up the wall fast like Spiderman!

When it was our turn I went on the left side and Ms. La’Tori went on the right side.  She smiled real big and asked if I was ready.  I said yes and we started climbing.  Ms. La’Tori stayed right next to me.  Sometimes I even went a little faster than her!  When I had trouble on the hard parts she asked me if I was okay.  She tried to help me by pointing to rocks I could put my hands and feet on.

I made it to the top first!  When I got to the top I cheered for Ms. La’Tori so she could make it to the top too.  I was hoping we could go down the zipline together, but there was a line of people on her side.  I thought I would be scared to go down the zipline because I wasn’t going with Ms. La’Tori.  But you know what?  Once I got all the way to the top, nothing was scary anymore!  It’s like I just had to climb the wall once and then I got brave.

Since I went down the zipline first, I got to watch Ms. La’Tori from the ground.  I guessed she was probably scared up there.  So I yelled real loud that she didn’t need to worry and that it was going to be so much fun.  She went down the zipline a really brave way – backwards!

I’m really glad I met Ms. La’Tori at camp.  She helped me do something I never got to do before!

Note from Will’s mom (Christine Ellery, Easter Seals Program Director): Some of the greatest blessings of working at Easter Seals have been the experiences and interactions with people my kids have had.  From a young age, my kids have met people of all ages and all abilities and disabilities, and as Easter Seals has expanded its Veterans Program, my kids have met amazing Veterans and Veteran families.  All these people have helped to shape my kids and their capacity for kindness and compassion.

About Will’s story above…  One thing worth mentioning is La’Tori is an Air Force Veteran, so probably not as afraid of heights as Will guessed!  I loved and appreciated how capable and brave La’Tori made Will feel, from the times she let him climb a little faster than her, to her taking in all his words (um, screams) of ziplining advice and no-fear from below.  She made him feel so confident.  And I hope being at Veterans and family camp made La’Tori feel confident.  As a mom whose baby was also in the NICU, I know there are so many questions and so much to be anxious about; it’s hard to feel confident.  But watching La’Tori with Will, it’s so easy to see what a great mom she is.  I’m so excited La’Tori’s sweet baby girl gets to come home soon!    

Christine Ellery, Easter Seals Program Director  ; Will Ellery, Lifelong Easter Seals Houston Volunteer and Kenzie Richard, Easter Seals Program Coordinator

 

Our BHP Community Quarterback Finalist

Congratulations Christian! You are a RockStar! So proud that you were chosen as a BHP Community Quarterback finalist! All finalists were recognized Sunday, December 8^th at the Houston Texans game and ESGH will receive a $5000 donation as a result of Christian’s long-standing work with our Camp Program.

Christian has been volunteering with Easter Seals Greater Houston’s camp programs for over a decade. Starting when he was 17 years old, Christian started as a volunteer at Camp Smiles, a week-long overnight camp that serves children with cerebral palsy. For years, Christian served as the one on one counselor for Kamal, a non-verbal camper who adored the support and friendship Christian gave him. Over the years, Kamal and Christian became life-long friends, and they still make time to celebrate graduations and big birthdays together. In recent years, Christian has taken on the role of head counselor, meaning he is in charge of an entire cabin of campers and volunteers for the week of camp. Christian is an incredible leader, both in the most serious and silliest aspects of ensuring a safe and enriching camp experience.

Christian is an integral part of the Camp Smiles community. Campers and volunteers alike adore him, and he is a trusted and remembered part of everyone’s camp experience. Not only has he impacted the lives of hundreds of campers, Christian, now a teacher, has also started recruiting his students to volunteer for camp. Christian is the perfect role model for the new volunteers’ first year at camp. The energy and light-hearted spirit Christian brings to camp is infectious; his desire to bond with each camper and counselor radiates, setting a standard of friendship within the cabin. They all became like brothers, creating a group bond that wouldn’t be possible without Christian. One of his students even earned the award of “best new counselor” at the end of camp, for his concerted effort to bond with his camper and make his week unforgettable. This success was the most certainly a result of Christian’s decade-long dedication to building stronger communities.

The most admirable aspect of Christian’s volunteerism is how effortless his hard work comes across, though his success as a camp leader comes from years of experience and dedication. From jokes, to encouragement, to tears at the end of camp, Christian is intentional about supporting each camper and volunteer in his cabin. Christian’s ability to see each camper as just another kid, despite any disability, allows him to build a community of inclusion around him. In the truest version of leading by example, the volunteers Christians brought to Camp Smiles caught onto this environment of inclusion starting on day one.  Not only did he teach this new generation of young men the basics of caregiving, Christian undoubtedly instilled in them the privilege and honor of serving others.

Christine Ellery, Easter Seals Greater Houston, Program Director

I am More than my Disability

We are working with Comcast Cable on their new eye gaze remote control for the TV which Time magazine says is one of the best inventions of 2019! Comcast Xfinity X1 Eye Control is one of TIME’s Best Inventions of 2019 We are very excited that our Easter Seals Greater Houston client, Alexis, was able to join us to help with the demo. Alexis’ unique way of communicating enables her to use her eyes as her mouse to navigate her on-screen keyboard and other pages of information on her tablet. AND makes her the perfect person to demonstrate the new EYE CONTROL remote for TV from Comcast! For more information on the Eye C9ontrol remote please contact Comcast! Read more about Alexis and her story below!

Alexis is a twenty-three-year-old young adult that has a physical disability known as Cerebral Palsy or (CP) which affects her muscle control of her upper and lower body extremities. She uses a wheelchair for mobility and is non-verbal. Her mother states that ” Alexis has a very sharp mind” and often described by others as a very talented young lady with such an awesome personality, a great sense of humor and is known for her beautiful contagious smile that will light up an entire room.

Alexis currently utilizes a Microsoft Pro Surface Tablet which is a Windows Base computer with the capability of eye-tracking technology to meet her communication needs. The eye-tracking technology also has a camera built-in with infrared lighting that tracks and follows the use of the retinas of her eyes as she navigates her computer (tablet) and her on-screen keyboard.  Alexis’ unique way of communicating enables her to use her eyes as her mouse to navigate her on-screen keyboard and other pages of information on her tablet.

To help get a better understanding of what it means to Alexis to have access to this type of advanced technology it has not only given her independence and ”  a voice” to independently communicate her own thoughts, feelings, wants, needs,  likes and dislikes, but it has also given her the ability to carry on an efficient conversation with family, friends, and individuals as she looks /dwells on a specific letter, word or phrase by just the use of eye gaze. The computer then immediately makes the information readily available to be typed and seen on her screen and has the capability to put her tablet into a voice output mode similar to (text to speech) to generate a voice to speak/ read aloud Alexis’ word , sentence, and/ or any other information that she has composed. This advanced type of assistive technology also continues to help support Alexis with the necessary tools she needs to continue to strengthen her self -advocacy skills. She is also able to text, email and access the internet. She is known by her family as the ” Queen of Amazon ” as she browses and makes purchases independently and always seems to have something saved in ” her cart”.

Alexis enjoys her leisurely time attending and participating in a wide variety of community events with her family and friends. She loves going on road trips, to parks,  The Rodeo, movies, the Mall, watching Netflix, Hulu, is always up for a good read and spending time with her yellow lab “Jasmine” at various dog events and visiting various dog parks.

Alexis wants to reach out to the community with a friendly reminder that her disability doesn’t define who she is … she doesn’t want people to identify her as ” the young lady with a disability “, ” the girl with Cerebral Palsy ” or ” the girl in the wheelchair”. She would like to be known by everyone as Alexis first and foremost. Alexis really appreciates when individuals see past her wheelchair and her disability and recognize her for her unique abilities instead of focusing on her disability.

Despite the daily challenges and barriers that Alexis faces she has many similar goals, dreams, and aspirations as her able-bodied peers. Alexis was educated alongside her able-bodied peers while attending public school from elementary thru her high school years. As her High School peers were doing the ” volunteer thing” she was given those same opportunities, she volunteered in the summer and really enjoyed giving back to her community. Alexis was able to develop new friendships and enlarge her friendship circle as well as gain new work-related skills while volunteering, which she hopes to be able to reach.  Her current goal is working really hard on things that will enable her to carry over those work-related skills along with her technology skills to possibly gain employment soon with a local business in her community.  She really feels that when given the proper training and supports and implementing her unique technology skills that she can be an asset to local business ‘.

Alexis wants to send a ” shout out” to everyone out in the community and if you happen to see Alexis when your “out and about ”  please take a moment to stop by and introduce yourself! She is really looking forward to meeting you and would love to chat!

Alexis Mendoza, Easter Seals Greater Houston, Client and Alexis’ Mom

Looking to Volunteer?

Know any retired, hardworking individuals that need something to focus their energy on?? We are the perfect group!! Our program could not function without dependable volunteers on our team! I currently have 5-7 volunteers that are volunteering with me on Mondays and Wednesdays at Easter Seals Greater Houston’s Adult Life Enrichment Program (LEAD) but I am in search of 1 – 3 more long term volunteers.

Why volunteer with our LEAD program? Hear from our volunteers yourself:

“My volunteering with Easter Seals’ program is the most enjoyable thing I do all week. The participants are genuinely friendly, warm and accepting of everyone, group members and volunteers alike. It is easy to volunteer because the activities are well planned and always interesting. But the most valuable thing to me is experiencing relationships with persons who have faced a lot of struggles and yet remain upbeat lovers of life. I find that inspiring. And, no group has more fun than we do!”

– Linda Meriwether, 5 years

“When I decided to retire from teaching after 33 years, I knew I needed to find something for me to do to occupy my time a few days a week.  When I was growing up, my mom did volunteer work for an organization in Indianapolis and I remember how much she loved it.  Easter Seals has been very special for me.  I feel I have found another family and I am very humbled to be able to work with these outstanding adults and young adults.  They brighten my day each time I go to group.  I leave every time feeling fulfilled after working with Ashley and the other terrific helpers. I know the adults and young adults have a wonderful experience every time we meet.”

-Tom Clancy, 7 years

“I ALWAYS look forward to Mondays and Wednesdays when I volunteer at the LEAD program. This is an amazing program!  It is so much fun to spend time with the clients and visit with the other volunteers. This is a very important program to the clients because most don’t have many other social-enrichment activities in their lives, and this program has allowed them to form friendships and have fun.  It is personally fulfilling to volunteer my time to this program.  I have had many blessings in my life, and this is a chance to ‘give back’”.  -Paul Smith, 4 years

“For more than nine years I’ve really enjoyed volunteering with the  Easter Seals Houston’s LEAD program… Working with everyone makes my day and week and year. I am blessed to have this opportunity to change lives for good and I get much more than what I put in. I am thankful for the chance to make a difference and have so much fun.” -Alyson Gershenson, 9 years

Details:

– Mondays and/or Wednesdays

– 9am to 12pm: 12pm to 3pm; or all day 9am to 3pm

– Memorial area at two different churches: MDPC and MDUMC; occasional field trips to movies, mall, sporting events, etc.

– what is LEAD? Life-enriching program for adults with varying disabilities which meets twice a week. Activities include: dance, yoga, crafts, music, games, karaoke, and more!

– duties: help individuals with varying disabilities participate in activities scheduled by Program Coordinator; assist with meals (serving and feeding); activity set-up and clean up; ensure the safety of all participants; encourage independence and participation of participants; work as a team with other volunteers and Program Coordinator

– must be able to pass background check

–  must be compassionate and caring; willing to learn how to work with all individuals no matter level of disability

– Preference: Personal reference of reliable volunteer; member of one of the two affiliated churches (MDPC & MDUMC)

Ashley Nichols, Easter Seals Greater Houston,  Program Manager, Adult and Recreation Services

Super Stegemann Sister Volunteer for 17 years Together

Shelby
Hello! My name is Shelby and I am a graduate student in a physical therapy program at the University of New England. I have been volunteering at ESGH  Camp Smiles for seven wonderful years. I love camp because it is truly a place that looks past disability and provides an awesome experience for some really cool kids. One of my favorite memories was with my camper Claire, who has a beloved stuffed Olaf (the snowman from Frozen). The whole week we were together, we brainstormed ways to include Olaf in all the activities, from dressing him up for the dance to having him shoot an arrow in archery! Every summer at camp is a great experience and I am so grateful for the wonderful friends and awesome memories I’ve made along the way.

Sierra
Hello! My name is Sierra Stegemann. I am a masters student at the University of Texas at San Antonio studying to become a Board Certified Behavior Analyst. I have been volunteering with Camp Smiles for six wonderful years. I have gotten to be a cabin leader, work as the Easter Seals intern, and have an amazing opportunity to be the counselor to my camper, Jackson, for the past three years. Camp is something that I look forward to all year long! My favorite part of camp has been getting to see my Jackson grow and building an awesome friendship with him. This past summer was especially important to me. Jackson is nonverbal and many people can be intimidated by him and are not sure how to interact with us, especially since we are always on the go! This summer our cabin really came together and learned different ways to communicate with him and created an inclusive environment that we hadn’t always had in years past. My favorite memory is everyone in the cabin learning his song that always made him smile and having a group jam session. Memories like that keep me returning to camp! It is always a nice break from the hustle and bustle of the “real world” and it will forever be my happy place.

Abby
Hello all! My name is Shay. For the last 3 years, Camp Smiles has been the highlight of my summer. I was first introduced to this amazing camp by my 2 older sisters, Shelby and Sierra. My first year, I was asked to come to camp the day before it was going to start. I was nervous about the last-minute request, but I agreed to join my sisters for what they promised would be a life-changing week. And they were right! Every year at Smiles is special. This summer was special to me because I had the pleasure of being the counselor to my pal, Nathan, who I have known for 3 years. It was wonderful to be a part of his first camp adventure- from seeing him go canoeing and fishing for the first time, to being covered in face paint laughing and cheering at the pep rally. My favorite thing about Camp Smiles is the community. I always say that I wish the real world were more like camp- inclusive, judgment-free, and full of smiles!

Emma
My name is Emma and I have volunteered at Camp Smiles for two years. My sisters have been volunteering at camp for some time now and I am so happy that I get to experience it with them. My favorite thing about camp is the atmosphere. Everyone is always so happy to be there and everyone is there for the same purpose: to have a great time. Camp is the one place I can be myself and know that nobody will judge me, and I know the campers feel the same way. I have been a counselor to Zoë for the past two summers and it has been awesome to witness her growth from the first summer I was her counselor to this summer. She went from barely speaking to me to speaking loud and clear, and it was amazing to see that transition in her. One of my favorite camp memories was after this year’s graduation ceremony. Zoë and I were both very emotional because she was graduating, but after I gave my speech, Zoë said my name for the first time and told me that I was her best friend. I feel so blessed to have had the opportunity to be at camp for 2 years, and I can’t wait for the many years to come.

Abby, Emma, Sierra, and Shelby: Easter Seals Greater Houston, Camp Smiles Volunteers

Celebrating NDEAM – National Disability Employment Awareness Month

David Wright is a recent graduate of Stephen F. Austin High School in Sugar Land where he was in our Easter Seals Houston High School High Tech / RAMP (Ready to Achieve Mentoring) program since his freshman year. David has been interested in becoming a herpetologist for a long time and knows A LOT about it. Freshman year it was hard for our staff to keep him on track because he always wanted to talk about lizards, snakes, and reptiles. We literally couldn’t get him to talk about anything else! Through the years David got better about this, was more open to participating in what the class was doing and it was obvious he was starting to pick up on the importance of our mentoring and lessons about social cues and soft skills and more. Jacquelyn Privatera Miller went with him to his interview for the internship at the Houston Museum of Natural Science at Sugar Land and he was SO professional, acted like a well prepared young adult and dressed himself so well for the interview. Everyone was really impressed. David is thriving in this environment and has opened up more and can have great conversations with people including his new co-workers. He even hugs Jacquie now when he sees her, which he would never ever have done before. So really he has just grown and matured so much in the last few years and is doing a really impressive job at his internship!  Help us congratulate David  as he is enjoying his 20 hours/week internship AND is also enrolled at Wharton Community College! Huge thanks to the museum and the museum staff for making it a life changing experience for David!

High School/High Tech is a community-based partnership of parents, educators, rehabilitation professionals and business representatives working together to encourage students with disabilities to explore the fields of science, engineering and technology. Only 56% of students with disabilities graduate from high school. High School/High Tech was developed to address this situation. Most individuals with disabilities have not had the encouragement, role models, access and stimulation to pursue challenging technical careers or courses of study. Through High School/High Tech, students with disabilities are presented a mix of learning experiences that promote career exploration and broaden educational horizons. High School/High Tech also offers a mentoring program called RAMP – Ready to Achieve Mentor Program. Learn more about High School/High Tech.

Jacquelyn Miller, Easter Seals Greater Houston, High School High Tech / RAMP